• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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MESH self testing resource

J

John Mac

Senior Member
Messages
321
Location
Liverpool UK
https://mesh.me.uk/


Our long term aim is to develop a PROMs (Patient Recorded Outcome Measures) tool for and by people with ME which will : help clinicians understand how debilitating ME can be; allow patients and clinicians to compare the effectiveness of treatments according to objective measurements without having to rely on subjective ones; hopefully make a valuable contribution towards developing a diagnostic tool allowing a more clear cut entry criteria for clinical trials
 
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