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Membrane lipid replacement for mitochondrial damage - comment by Mady Hornig

Discussion in 'General Treatment' started by Sasha, Apr 4, 2016.

  1. Sasha

    Sasha Fine, thank you

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    Mady Hornig was quoted in The Guardian today:

    I've never heard of this.

    Here's a random web thing on it, which I haven't read yet:

    https://thequantifiedbody.net/repair-mitochondria-lipid-replacement-garth-nicolson-phd/

    Has anyone heard of this/tried it?

    Interesting that Mady Hornig seems to view a mitochondrial-damage group as a distinct subset from the autoimmune group.
     
  2. Richard7

    Richard7 Senior Member

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    I did read up on it a couple of years ago on myhill's site http://drmyhill.co.uk/wiki/Phospholipid_exchange

    I did not follow it any further because I had to choose where to put my energy and my gut was a major issue, but I hope the link helps.
     
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  3. msf

    msf Senior Member

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    Garth Nicholson has been advocating this for quite a while in Gulf War Syndrome and other chronic illnesses.
     
  4. Sidereal

    Sidereal Senior Member

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    There are probably dozens of threads about this. Phospholipid supplements have been recommended by some doctors for a very long time in this illness. NT Factor helps me personally but it's a very small effect and the high cost is a factor.
     
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  5. Sasha

    Sasha Fine, thank you

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    Even a small effect would be great - nothing seems to help me. The high cost is a bummer, though.

    Have there been trials in ME/CFS?
     
  6. Sidereal

    Sidereal Senior Member

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    I don't know if there have been trials. There are anecdotal reports of benefit. Some reports of harm too. Just like everything else with this illness, you know how it goes.
     
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  7. adreno

    adreno PR activist

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    Not impressed that Hornig "recommends" this type of therapy. There has been zero quality trials on this modality and even anecdotal reports have been unimpressive. I don't think it has even been proven that taking phospholipids can repair your cell membranes.
     
  8. A.B.

    A.B. Senior Member

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    jimells, ScottTriGuy and Sasha like this.
  9. Marky90

    Marky90 Science breeds knowledge, opinion breeds ignorance

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    I must say I was a bit perplexed by some of Hornigs statements, I kinda prefer the more modest approach by Fluge&Mella. Unless they know something we don`t (as they might), i rather have studies speak for themselves.
     
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  10. Sasha

    Sasha Fine, thank you

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    The guy being interviewed on The Quantified Self is Dr Garth Nicolson, who it says has worked on GWS and CFS.

    The name doesn't ring a bell with me - is he well known?
     
  11. Sasha

    Sasha Fine, thank you

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    How long did it take you to see an effect?
     
  12. adreno

    adreno PR activist

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    Yes, he is well known for selling his NT factor products.
     
  13. aimossy

    aimossy Senior Member

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    I didn't read anything in this where Dr Hornig recommended a treatment, did I miss something?!
     
  14. Sasha

    Sasha Fine, thank you

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    The bit I bolded in my first post.
     
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  15. Sidereal

    Sidereal Senior Member

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    A day or two.
     
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  16. Sasha

    Sasha Fine, thank you

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    Good to know - it's a pain to test things where it takes months to expect an effect, if at all.
     
  17. Sasha

    Sasha Fine, thank you

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    What product do/did you use? Is it on Amazon UK?
     
  18. Sidereal

    Sidereal Senior Member

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    I don't know if it's available on Amazon UK. I get it on iHerb:

    http://www.iherb.com/Nutricology-NT-Factor-EnergyLipids-Chewables-60-Chewable-Tablets/49283

    I use this particular version of the NT Factor because it doesn't have the added "mitochondrial supplements" which are much too stimulating for me and make me really sick. But it's very expensive + delivery + customs (for those of us in the EU) so I'm not sure if it would be worth your while.
     
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  19. Sidereal

    Sidereal Senior Member

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    Plus, clinicians treating ME/CFS patients like Cheney had been using this stuff for years. If it helped a significant portion of patients, we'd know about it.
     
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  20. Sasha

    Sasha Fine, thank you

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    Thanks - I was looking at one on the NT (?) site that had beetroot in it for colouring, which put the knackers on that for me (causes migraines). So much to be careful about!
     
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