August 8th, 2018: Understanding and Remembrance Day for Severe ME
Have you heard of our Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance? Please join Jody Smith in observing this day and honoring the 25% of those with ME/CFS who are most severely ill.
Discuss the article on the Forums.

#MEAction Protest of CFSAC Shutdown 14 Sept 2018 Washington, DC

Discussion in 'Action Alerts and Advocacy' started by Gemini, Sep 8, 2018.

  1. Gemini

    Gemini Senior Member

    Messages:
    810
    Likes:
    1,569
    East Coast USA
    Jackb23, Dolphin, RobR and 2 others like this.
  2. jesse's mom

    jesse's mom Senior Member

    Messages:
    701
    Likes:
    1,746
    Alabama USA
    BUT Why, do we really live in a free country? GRRR
    This is me not being too political, but good grief!
    1st amendment rights?
     
  3. Gemini

    Gemini Senior Member

    Messages:
    810
    Likes:
    1,569
    East Coast USA
    Lisa108 likes this.
  4. Gemini

    Gemini Senior Member

    Messages:
    810
    Likes:
    1,569
    East Coast USA
    ALERT: #MEAction has canceled the in-person protest on Friday 14 Sept due to the hurricane expected that day. It will be re-scheduled at a later date.

    The "Virtual" protest listed above will take place, however.

    @Ben HsuBorger, do you have phone and e-mail contacts for HHS Secretary Azar yet?
     
    Roy S likes this.
  5. Roy S

    Roy S former DC ME/CFS lobbyist

    Messages:
    672
    Likes:
    1,410
    Illinois, USA
     
    Dolphin and Gemini like this.
  6. Gemini

    Gemini Senior Member

    Messages:
    810
    Likes:
    1,569
    East Coast USA
    Reply from @Ben HsuBorger:

    We're holding off on a coordinated email and phone campaign because of Hurricane Florence, but we'll mobilize for this at another time soon. You can still send an email to him now if you want though.

    What we are asking people to do is take action on Social media and help get the narrative out there that CFSAC mission has not been accomplished and the community stands in solidarity and opposition to this. We need to build momentum.


    For more info see this page:
    https://www.meaction.net/2018/09/07/how-to-protest-hhs-with-meaction/

    Ben
     

See more popular forum discussions.

Share This Page