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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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@JaimeS Would you like a statement by someone who doesn't seem to be at risk of permanent harm by exertion but doesn't find it an effective treatment either?
Could be useful, because some could try to argue that GET helps a subgroup.
All hands on deck!
http://www.meaction.net/2016/09/12/uk-and-global-petition-its-time-to-stop-get-trials-for-mecfs/
There are two petitions - a global #MEAction one (everyone can sign) and one especially for UK people, aimed at getting at least 10,000 signatures to get a government response (it's on the UK govt site, where that happens automatically).
UK government petition
Global petition
Sign and share - let's get it out there and break all records!
I am very glad this petition has been started!
Just wondering if this should be in the Advocacy section
I have added this to the petition on my facebook page
Sophia Mirza 1973 - 2005 Her mother writes 'The doctors and psychiatrist threatened Sophia with sectioning in a mental hospital if she refused to go into a particular M.E. Clinic. They carried out their threat in July 2003. The effects on Sophia's health were devastating. She died on 25th November 2005. She was only 32.'
http://www.25megroup.org/info_me_stories.html#lynnstory
Thanks for that, now I know I can vote on both!Thanks for making it clear that UK citizens, even if they don't live in the UK, can vote in the UK poll.
OTH
Impossible to 'like' that message, Jan, but thank you for posting.
-J
Twice as good as me. I only got to sign one of them.Signed them both!
I doubt it will have the desired effect, but it will still turn up the heat.
And just as the PACE petition did, this GET/MAGENTA petition will be a very useful (peaceful) weapon in the hands of people like Tuller, Racaniello and others.
@Sasha, I do agree we can have an impact. The issue here is how much the UK government can influence this even if they wanted to.
I love that the UK has a map on the petition where you can see which areas have people who have signed. A great way to show your MP that this issue is meaningful to their constituents!