Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Awesome, thank you.@JAH (or @Woolie?) - James Coyne is giving this talk in Edinburgh on Monday and he's talking about how the conversation about ME/CFS is going to change.
Best case it means he's got so much vexation lined up for the pace authors and journalists who have perpetrated this fraud that they won't be able to get away with petty name-calling any more. Hopefully more vexation coming from reputable and respected members of the scientific / medical / research community. What a splendid job he's doing.He also tweeted this: Any journalists so inclined, encouraged to label #MECFS community "vexatious" while they can. Option expires Monday, November 16 at midnight
Does this mean something? An announcement coming on Monday, or is he just throwing that date out there?
Although previously abused, the "vexatious" #MECFS community must accept winning with dignity and be forgiving.
Are you at or more of a ?I have been practising my most dignified and forgiving demeanour in the mirror. It's not easy, It looks more like smug and vindictive at the moment, but I'll keep practising and maybe I'll get there.
I must admit, smug comes more naturally to me, but I'm working on being more angelic. It's a work in progress that seems to be taking a lifetime, I'll keep at it though.Are you at or more of a ?
Forgiving is fine for those who have not orchestrated this whole sorry affair. I understand entirely that people have been fed a pack of lies and twisted facts. But, personally, I will have a very hard time forgiving the people who deliberately misled and maligned. People have been dying in despair. I don't see that their actions should be forgiveable.
I imagine we're all in the same place. I don't think most people are suggesting we forgive and forget where the perpetrators of the lies and harm are concerned.Forgiving is fine for those who have not orchestrated this whole sorry affair. I understand entirely that people have been fed a pack of lies and twisted facts. But, personally, I will have a very hard time forgiving the people who deliberately misled and maligned. People have been dying in despair. I don't see that their actions should be forgiveable.
So uh... What's the status of this? Was the petition delivered somewhere? To the Lancet?