#MEAction petition: MISLEADING PACE CLAIMS SHOULD BE RETRACTED

[Scarecrow]

7,500!

Your eyes going blurry, Sasha?

I make it and 1/2

 

[Keela Too]

Okay guessing the 10 000 mark. Date - 12th Nov (UK time 8pm) or earlier

 

[Sasha]

Your eyes going blurry, Sasha?

I make it and 1/2

Can't keep up! 7,786 now.

Okay guessing the 10 000 mark. Date - 12th Nov (UK time 8pm) or earlier

I'm guessing 8k today, 2k to go, slow weekend coming up but maybe some more charities will boost it - I think Tuesday, 10 Nov, 8pm UK time.

 

[jimells]

Hmmm...might depend on search history as well.

Still, keep linking and it will move up

Yes, Google looks at your history and shows you what it thinks you want to see, just like politicians tell you what they think you want to hear.

 

[Sasha]

8,000 overnight! I'm still betting Tuesday for the 10k - keep it up, folks!

 

[Keela Too]

You might be right Sasha... numbers are still rising steadily. Doesn't seem to be having a drop off in rate yet! I will be delighted if you are right and I am wrong on this one!

 

[Sasha]

Picked up hundreds more so far today despite our approaching the weekend slow-down. I just emailed a few more friends I'd forgotten about and saw their names pop up (very satisfying!).

8,300 now!

 

[Sasha]

8,500!



Things typically slow down at the weekend but I'm still betting we'll reach 10,000 by 8pm GMT on Tuesday!

 

[Kyla]

I asked Morgan Fairchild to tweet about the petition...and she retweeted it!

She has, (drumroll please)...40,000 followers

Fingers crossed we get a few to sign.

 

[SOC]

I asked Morgan Fairchild to tweet about the petition...and she retweeted it!

She has, (drumroll please)...40,000 followers

Fingers crossed we get a few to sign.

Brilliant, Kyla!

Has anyone communicated with Lady Mar about the petition?

 

[Sasha]

I asked Morgan Fairchild to tweet about the petition...and she retweeted it!

She has, (drumroll please)...40,000 followers

Fingers crossed we get a few to sign.

Oh wow, that was brilliant! Nice going!

 

[Sasha]

Has anyone communicated with Lady Mar about the petition?

Doubt it - does she have any sort of social media following? I bet she'd sign it, though!

Would someone like to contact her? I'm sure her details must be online. Via the House of Lords, maybe.

 

[MEMum]

Brilliant, Kyla!

Has anyone communicated with Lady Mar about the petition?

I know very little about tweeting, but Jane Colby (Tymes Trust) tweets and works with the Countess of Mar.

 

[SOC]

I know very little about tweeting, but Jane Colby (Tymes Trust) tweets and works with the Countess of Mar.

Does anyone know how to contact Jane Colby and ask her to bring this to the attention of the Countess of Mar? I also know very little about tweeting, but surely a tweet to Jane Colby would work?

 

[Kyla]

Oh wow, that was brilliant! Nice going!

Thanks Sasha.
unfortunately in retrospect I think the timing was off. Probably not many would have seen it on a Saturday night when healthy people go out and do things.

things to consider in future

 

[Sasha]

8,700!



46 hours to get 1,300 more signatures, if I'm to win my bet.

Very doable!

 

[Research 1st]

Hi again, have been thinking of some more ways to get signatures to reach the 10,000 goal from the current 8700+.

Some additional facebook groups below will likely have patients who are experienced in having psychiatrists tell them they are crazy with 'CFS' (e.g. POTS, Lyme). So they will also understand how important it is for ME CFS sufferers to be taken seriously and their biomedical disease treated with the respect it deserves.

Perhaps, some in the groups below may be willing to sign the petition, if politely asked?

If anyone has a facebook account, please consider asking the following groups, to sign, if possible.

Thank you.

https://www.facebook.com/PotsPositive/
https://www.facebook.com/IrishDysautonomiaAwareness/
https://www.facebook.com/DysautonomiaInternational/
https://www.facebook.com/POTS-UK-185492778170610/
https://www.facebook.com/ILADS-Lyme-Society-120608014816/
https://www.facebook.com/LymeDiseaseUK/
https://www.facebook.com/LymeDiseaseAustralia/
https://www.facebook.com/Lyme-disease-one-day-at-a-time-327348653971656/
https://www.facebook.com/2LymeDisease.org/
https://www.facebook.com/LymeDiseaseAssociation/
https://www.facebook.com/Lyme-Disease-Awareness-116240741744558/
https://www.facebook.com/POTSawareness/
https://www.facebook.com/NO2POTS/
https://www.facebook.com/PotsSupportAndAwareness/

 

[Sasha]

I'm not on FB and have no idea how to get this done. Anybody?

I agree that we should be reaching out to anyone who is going to understand that bad science goes on and should be stopped, and is close enough to our disease to have enough fellow-feeling to be motivated to sign.

There are probably a lot of ME groups on FB too - I suspect a lot are poorly connected with the community and may not be aware of what's going on.

 

[Sasha]

Does anyone know how to get a QR code for this, from a trustworthy site?:

http://my.meaction.net/petitions/pace-trial-needs-review-now

Is anyone able to do it and upload a JPEG here, please?

 

[adreno]

Made here:
http://www.qr-code-generator.com/