International ME/CFS and FM Awareness Day Is On May 12, 2018
Thomas Hennessy, Jr., selected May 12th to be our international awareness day back in 1992. He knew that May 12th had also been the birthday of Florence Nightingale. She was the English army nurse who helped to found the Red Cross as well as the first school of nursing in the world.
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MEA gives guarded welcome to US Pathways to Prevention Report

Discussion in 'General ME/CFS Discussion' started by charles shepherd, Jan 5, 2015.

  1. charles shepherd

    charles shepherd Senior Member

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  2. charles shepherd

    charles shepherd Senior Member

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    An important report was published in the USA just before Christmas that was designed to a) identify research gaps in ME/CFS, b) identify methodological and scientific weaknesses, c) suggest research needs, and d) move the field forward through an unbiased, evidence-based assessment of a complex public health issue.


    The report was published as part of the Pathways to Prevention programme of the National Institutes of Health (NIH), and was produced by a panel of independent academics – none of whom had ‘history’ in ME/CFS. What they came up with could have worldwide repercussions for the way ME/CFS is researched in the future.

    Here, DR CHARLES SHEPHERD, medical adviser to The ME Association, summarises the key findings of the draft executive summary and considers where we might go from here.
     
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  3. worldbackwards

    worldbackwards Senior Member

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    Edit - Just me being blind again, nothing to see here, etc...
     
  4. Sasha

    Sasha Fine, thank you

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    Thanks, @charles shepherd. A lot of us are working on responses to P2P (I took a break from writing mine to look at your thread!).

    Does the MEA plan to submit its comments to the NIH? I really hope it will! We all need to be making that point about money.
     
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  5. Sasha

    Sasha Fine, thank you

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    The link is in the first post. :)
     
  6. worldbackwards

    worldbackwards Senior Member

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    Ah!
     
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  7. duncan

    duncan Senior Member

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    Wow. Really?
     
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  8. charles shepherd

    charles shepherd Senior Member

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    Reply

    Yes, we will be sending in a modified version of this, and adding some meat to the bone where necessary, as a response

    Can you remind us of the date by which submissions have to be made?

    C
     
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  9. Sasha

    Sasha Fine, thank you

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    Excellent!

    Deadline for response: 16 January.

    The NIH response instructions are to "please reference the corresponding line number of the report", and submit your comments via prevention@mail.nih.gov or postal mail to:

    Office of Disease Prevention
    National Institutes of Health
    ATTN: Paris A. Watson
    6100 Executive Boulevard, Suite 2B03
    Bethesda, MD 20892
     
  10. charles shepherd

    charles shepherd Senior Member

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    Thanks Sasha - this is the website link if anyone requires more details on the submission of comments to NIH:

    https://prevention.nih.gov/programs-events/pathways-to-prevention/workshops/me-cfs/public-comments
     
    Sasha likes this.

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