ME Trust joins UK ME/CFS Biobank Steering Group

[AndyPR]

We are delighted to have accepted an invitation to join the Steering Group of the UK ME/CFS Biobank. The Biobank is run by CureME and is driving clinical & biomedical research for recognition, diagnosis and treatment of ME/CFS. We are pleased to be working alongside the ME Association and ME Research UK on the Steering Group.

http://www.metrust.org.uk/2017/04/11/me-trust-joins-uk-mecfs-biobank-steering-group/

That's all it says at the link, though you do get a picture of the Biobank team as well

 

[slysaint]

Nice to see a project that has a steering group, unlike another one we know about.....

 

[user9876]

I've never come across the ME Trust before.

 

[Hutan]

Hmm. From the ME Trust website, Anne's story:

One highlight of my stay was a visit from Hannah Clifton from The M.E. Trust. I was really struck by her story of recovering from very severe ME. She made me feel I could do it too, which was remarkably encouraging and empowering. After my stay I was gradually able to start going out more and more, and using NLP techniques I became a lot better. For 18 months I was functioning at 50-60% and able to walk half a mile, follow courses at a local college, cook, visit friends and do so many things I hadn’t done for a very long time.

...

A year later, when I felt the time was right, I did the Lightning Process. I made progress quickly. I was soon climbing the Malverns!

I'll be interested to hear what those of you familiar with the ME Trust have to say.