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ME-conference in Sweden with English-speaking lecturers Wed Oct 19th, available for streaming

Discussion in 'Upcoming ME/CFS Events' started by Kalliope, Oct 18, 2016.

  1. mango

    mango Senior Member

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  2. mango

    mango Senior Member

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  3. mango

    mango Senior Member

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    Dr Per Julin again, talking about neuro radiological studies in ME/CFS.
     
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  4. Sasha

    Sasha Fine, thank you

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    Unfortunately, I had to deal with something else while Jo Cambridge was presenting. Was there any interesting new upshot from the work (I realise it's a long game!)?
     
  5. eafw

    eafw Senior Member

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    This looks like a very interesting conference, will someone flag up when the videos go online to watch later ?
     
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  6. mango

    mango Senior Member

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    You can email questions to norr@rme.nu for the Q&A panel session that starts in approx half an hour (3.20pm local time.)
     
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  7. mango

    mango Senior Member

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    Speaking now (in Swedish) is Ewa Wadhagen-Wedlund, occupational therapist at the ME/CFS centre, Stora Sköndal.
     
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  8. mango

    mango Senior Member

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    I didn't catch anything new, but I learnt a lot about b-cells and how Rituximab works :)
     
  9. mango

    mango Senior Member

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    From Julin's talk, a summary of some of the ME/CFS researching being done at Stora Sköndal/Karolinska Institutet

    [​IMG]

    (Sorry, I'm crap at this, but here's my attempt at a translation: )

    * Current: Microglia PET study in collaboration with PET-center Karolinska University Hospital
    (Stenkrona, Jucaite, Halldin, Forsberg, Evengård, Watanabe, Farde)

    10 ME-patients are examined with [11C]MADAM which measures the amount of serotonin transporter (SERT) and [11C]PBR28 which measures the degree of inflammation in the brain

    * Currently planning: (start January 2017): Immunology and MRT, in collaboration with Uppsala University and MR Karolinska University Hospital
    (Blomberg, Kristoffersen-Wiberg, Li, Granberg, Erlandsson-Nordin)

    Immunological abnormalities in blood tests and structural and functional changes (MRT) in relation to the clinical picture

    * Currently planning: FDG-PET study in collaboration with Nuclear medicine Karolinska Huddinge
    (R Axelsson, I Savitcheva)

    Focal metabolic changes in relation to the clinical picture
     
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  10. mango

    mango Senior Member

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    Another one of Julin's slides:

    [​IMG]

    Neuroradiology in ME/CFS

    * Clinical use: to exclude other illnesses (MRT)

    * Research (focus of this presentation)
    - abnormalities on a group level
    - understanding the mechanisms of the illness
    - identification of future possible diagnostic biomarkers
    - assessment of treatment effects
    --- the structure of the brain (MRT)
    --- the function of the brain (MRT, SPECT, PET)
    --- inflammation in the brain (PET)
     
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  11. mango

    mango Senior Member

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    One of Cambridge's last slides:

    [​IMG]
     
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  12. mango

    mango Senior Member

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    Jo Cambridge said something about a new paper they are currently writing up, something about resting b-cells using energy differently than other b-cells (naive ones?). I can't remember the details, sorry...
     
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  13. mango

    mango Senior Member

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    Another one of Cambridge's slides:

    [​IMG]
     
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  14. mango

    mango Senior Member

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  15. mango

    mango Senior Member

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  16. mango

    mango Senior Member

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    Some more random slides from Cambridge's presentation:

    [​IMG]

    [​IMG]

    [​IMG]

    [​IMG]

    [​IMG]
     
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  17. mango

    mango Senior Member

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    One of Rosén's slides, current research that is not yet published.

    [​IMG]
     
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  18. mango

    mango Senior Member

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    I'll post a link in this thread when they are available.
     
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  19. Kalliope

    Kalliope Senior Member

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    Today's conference is already available here:
    https://play.vll.se/category/5/video/214/rme-konferens-19-october-2016-2

    6 1/2 hours! :) Looking forward to see it!

    EDIT for English speaking audience:

    Lucinda Bateman's lecture Summary of the IOM Report, and the relationship to diagnosis and treatment of ME/CFS starts at 42:47

    Prof. Anders Rosén Metabolic features of Chronic Fatigue Syndrome at 01.35.05

    Geraldine Cambridge's lecture Rituximab for ME/CFS: Revealing immunological cues to underlying disease mechanisms starts at 02.53

    Panel discussion (in English) at 05.15
     
    Last edited: Oct 19, 2016
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  20. mango

    mango Senior Member

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    If you're interested in Jo Cambridge's personal opinions about Rituximab and people's attitude towards her research etc, make sure to keep listening when they take a break in the afternoon, after Julin's second presentation, before Ewa W-W's presentation.

    (If they haven't edited that part out. I don't think she was aware that the mic was still on..!)
     
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