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ME Chronic Fatigue Association: Raising funds for research

Ember

Senior Member
Messages
2,115
Created by Derek Enlander
January 18, 2013

picture


“Raising funds to provide research in Myalgic Encephalomyelitis Chronic Fatigue Syndrome ME CFS, a debilitating disease that ravages patients and interrupts life, education and careers. The funds will be used to research diagnosis and treatment.”

Goal: $50,000.00
$0
raised by 0 people in 10 months.

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aimossy

Senior Member
Messages
1,106
oh my memory!
What is Dr Enlander looking into specifically or will be researching?
Can you donate from outside USA?:)
 

Ember

Senior Member
Messages
2,115
What is Dr Enlander looking into specifically or will be researching?
There are at least two threads on his clinical trials:

“Mount Sinai is conducting a study on ME/CFS, to learn more about the immune system and genomic data of patients with ME/CFS:” http://forums.phoenixrising.me/index.php?threads/mt-sinai-recruiting-for-pem-study.20347/

“Treatment of Myalgic Encephalomyelitis, Chronic Fatigue Syndrome using methylation cycle supplements in a double-blind study:” http://forums.phoenixrising.me/inde...ew-trial-using-methylation-supplements.24397/
 

justinreilly

Senior Member
Messages
2,498
Location
NYC (& RI)
Thanks to Beaker for posting the following on another thread. He found out from Dr. Enlander there are two foundations you can donate to. The second is definitely tax-deductible, the first one, beaker thinks is tax-deductible. As Beaker pointed out, the website listed in the first post of the thread may take out a cut. If so, it would be better to donate directly to one of the below. (for example, Jen Brea wrote that kickstarter and amazon payments took 7 - 10% of the total raised for her kickstarter campaign)

Hopefully, this information can be listed in the first post, so people don't miss it.

1. Names of Foundations Caron and Derek Enlander Foundation
2. Contact information Derek Enlander MD
860 Fifth Avenue
New York NY 10065
3. Who to make check out to.
Derek Enlander MD notation Caron and Derek Enlander Foundation
4. What is each foundation supporting?
Medical Research in these specific areas

Cancer research
ME/CFS research especially treatment of Chronic Fatigue Syndrome
Fibromyalgia cause and treatment
Lymes Disease
Want to know specifically where the money is going and how it will be used..
as specified above

==============================================
1. Names of Foundations

Mount Sinai ME/CFS Center
Mount Sinai School of Medicine
c/o Derek Enlander MD
860 Fifth Avenue
New York NY 10065
3. Who to make check out to.
Mount Sinai ME/CFS Center
4. What is each foundation supporting?
Medical Research in these specific areas

ME/CFS research especially treatment of Chronic Fatigue Syndrome
 

Ember

Senior Member
Messages
2,115
As Beaker pointed out, the website listed in the first post of the thread may take out a cut.
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