August 8th, 2018: Understanding and Remembrance Day for Severe ME
Have you heard of our Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance? Please join Jody Smith in observing this day and honoring the 25% of those with ME/CFS who are most severely ill.
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ME/CFS Wisconsin(Fox Cities)?

Discussion in 'General ME/CFS Discussion' started by JBoneske, Apr 16, 2018.

  1. JBoneske


    I’m currently wrapping up neurology route. Doesn’t look like we’re going to find anything for my symptoms. Been a long road as you all obviously know.
    Anyone know of a Dr that could help me in this area(Appleton,Oshkosh, Milwaukee, etc...) that takes insurance. I did contact a dr in Green lake but no reply yet.
    I’m quite certain that I’m dealing with what you are. Totally lines up with the whole way this has went down.
    Thenk you very much. Really want to get diagnosed soon so I can possibly put that part behind. No diagnosis really sucks.
  2. Judee

    Judee Senior Member

    I am in Milwaukee and from what I've been able to discovered so far is there are no CFS doctors in the state. The WI chapter of ME/CFS foundation did offer me the name of a doctor who happens to be just down the road from me but when I researched him online another patient who had been referred to him in the same way said that he acted like he didn't know anything about CFS and told her to go back to her PCP. I am so glad I checked first. Even being down the road, it is too difficult for me to go to an appointment only to find out the doctor is not helpful.

    Illinois might have specialists if you have the energy to get there. I noticed Leonard A. Jason, PhD Director: Center for Community Research, DePaul University, Chicago IL Board of Directors: American Association for Chronic Fatigue Syndrome listed in the The Canadian Consensus Document on ME/CFS and have thought about contacting his department to see if he knows of any treating CFS specialists in the area.

    Wish I could help you more. (Please let me know if you do find someone as I might be interested too.)

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