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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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ME/CFS Wisconsin(Fox Cities)?

Messages
80
Hi.
I’m currently wrapping up neurology route. Doesn’t look like we’re going to find anything for my symptoms. Been a long road as you all obviously know.
Anyone know of a Dr that could help me in this area(Appleton,Oshkosh, Milwaukee, etc...) that takes insurance. I did contact a dr in Green lake but no reply yet.
I’m quite certain that I’m dealing with what you are. Totally lines up with the whole way this has went down.
Thenk you very much. Really want to get diagnosed soon so I can possibly put that part behind. No diagnosis really sucks.
Sincelry
Jeff
 

Judee

Psalm 46:1-3
Messages
4,494
Location
Great Lakes
I am in Milwaukee and from what I've been able to discovered so far is there are no CFS doctors in the state. The WI chapter of ME/CFS foundation did offer me the name of a doctor who happens to be just down the road from me but when I researched him online another patient who had been referred to him in the same way said that he acted like he didn't know anything about CFS and told her to go back to her PCP. I am so glad I checked first. Even being down the road, it is too difficult for me to go to an appointment only to find out the doctor is not helpful.

Illinois might have specialists if you have the energy to get there. I noticed Leonard A. Jason, PhD Director: Center for Community Research, DePaul University, Chicago IL Board of Directors: American Association for Chronic Fatigue Syndrome listed in the The Canadian Consensus Document on ME/CFS and have thought about contacting his department to see if he knows of any treating CFS specialists in the area.

Wish I could help you more. (Please let me know if you do find someone as I might be interested too.)