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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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ME, CFS and current treatments

Skippa

Anti-BS
Messages
841
Say, I'm really curious now.

Lately there have been patients that respond to Rituximab (but not everyone).

Patients that respond to LDN (but not everyone).

Even a group of opiate responders (including myself) but even more interestingly not all opiate responders respond to LDN.

So, are there patients out there who consider they have ME that have found benefit from any of these treatments I just mentioned?

Likewise, are there any patients who consider they have CFS (or perhaps lets call it "not ME") that have found benefit from any of these treatments?