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ME Assoc: Countess of Mar and Lord Hunt defend ME/CFS in Lords debate on MUS

The Countess of Mar was once again defending people with ME/CFS in the House of Lords yesterday, this time in a debate about medically unexplained symptoms (MUS).

The transcript, below, can be read in situ from the website, TheyWorkForYou. You should note that I am only reporting here on the section of the debate that featured ME/CFS, and not in its entirety.

The debate followed the publication in February of a report by the joint commission for mental health on medically unexplained symptoms, and it was in this report that ME/CFS was mentioned by way of an example.

Lady Mar (pictured) raised a number of important issues, and again received confirmation from the Government that ME/CFS was recognised as a neurological condition in accordance with WHO classification, but as a disease with unknown origin.

She was not happy to learn that ME/CFS had been listed as a medically unexplained condition by some clinicians when no specific definition for MUS appeared to exist.

She said that in some instances the treatments were wrong, short-lived and potentially damaging to health, and that the PACE trial – which appears to have underwritten CBT and GET – had now been discredited.
http://www.meassociation.org.uk/201...-medically-unexplained-symptoms-05-july-2018/