Our Newly Ill Face Their First Holiday Season with ME/CFS
Don't look now! The holiday season is on its way. I've lived through decades of them with ME/CFS. So have many of you in our chronically ill community. That's beyond sad for all of us. But at least we have some idea what we're contending with, and have learned our ways of handling...
Discuss the article on the Forums.

ME: a debilitating illness with no known cure - UK Timesonline

Discussion in 'General ME/CFS News' started by Min, Feb 19, 2010.

  1. Min

    Min Guest


    (does anyone know if it's also in the printed edition please?)

    comments can be left or letters to the editor (including full address & phone number)can be sent to:


    ME: a debilitating illness with no known cure

    "Lynn Gilderdale had ME diagnosed at the age of 14, triggering her descent from an active teenager to a lonely, bed-ridden young woman dependent on round-the-clock care.

    Here are some facts about the condition:

    Around 250,000 people in the UK are thought to have myalgic encephalopathy, known as ME, or Chronic Fatigue Syndrome (CFS)

    The most common symptoms are severe fatigue or exhaustion, problems with memory and concentration and muscle pain.

    The exact cause of the condition is unknown, but some viral infections, such as glandular fever and traumatic events can act as triggers

    There is no accepted cure and no universally effective treatment. Treatments that have reduced particular symptoms in some have proved ineffective or counter-productive in others

    Famous ME sufferers include the novelist and former yachtswoman Clare Francis, the Duchess of Kent and Emily Wilcox, eldest daughter of Esther Rantzen :rolleyes: and her late husband Desmond Wilcox

    It was first diagnosed in 1955 after an outbreak of an unexplained illness in London but it did not become widely known until the 1980s, when it was named yuppie flu. In the 19th Century what was popularly known as the vapours may have been ME

    Some of the most serious cases are said to involve teenagers aged between 13 and 16

    Predisposing factors to developing ME are thought to include: having other sufferers in the family; altered immune response, due possibly to previous infections such as glandular fever or hepatitis; exhaustion and mental stress, for example, athletic over-training or stress from work

    Results from studies indicate that ME often becomes a chronic and very disabling illness, with full recovery occurring in only a small number of cases

    A series of recommendations were made in December last year after an all-party parliamentary group (APPG) inquiry into NHS provision for ME/CFS sufferers

    The APPG said that it was aware of many severely ill patients receiving either inadequate care or no NHS care at all. It called for specialist referral services to ensure that high priority is given to those severely affected. "
  2. Carrigon

    Carrigon Senior Member

    PA, USA
    It sounds like a much more respectful article. I hope the tides keep on turning and we continue to get better press.
  3. The Minkey

    The Minkey

    Much more respectful,yes, but where's 'post-exertional malaise' in the list of the most common symptoms?
  4. Martlet

    Martlet Senior Member

    Near St Louis, MO
    I think that illustrates the continued need to educate the media.

See more popular forum discussions.

Share This Page