Some interesting stuff in here...
http://www.investinme.org/Documents/Journals/Journal of IiME Vol 7 Issue 1.pdf
http://www.investinme.org/Documents/Journals/Journal of IiME Vol 7 Issue 1.pdf
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Just had a moment to skim, but noticed this (bottom pg 6):
"This year we would also like to thank the Edward P. Evans Foundation for contributing to the costs of the conference. The Foundation is also a major funder of ME research with recent awards to OMI Merit and Griffith University showing a commitment and vision which is to be welcomed as we try to facilitate international collaboration and sharing."
Wow - Edwards P. Evans Foundation - you rock!!! I wish we knew to thank them for these contributions when the OMI-Merit grant ecard was going around.
I just had a look at their website and it says "the Foundation's primary mission: supporting transformational and collaborative medical research in the areas of Myelodysplastic Syndromes and Acute Myeloid Leukemia"
Interesting that they are helping us with CFS, we ae lucky to have their support!!
Now back to the Invest in ME Conference (don't want to hijack the thread), thanks for posting Sasha
Just had a moment to skim, but noticed this (bottom pg 6):
"This year we would also like to thank the Edward P. Evans Foundation for contributing to the costs of the conference. The Foundation is also a major funder of ME research with recent awards to OMI Merit and Griffith University showing a commitment and vision which is to be welcomed as we try to facilitate international collaboration and sharing."
Wow - Edwards P. Evans Foundation - you rock!!! I wish we knew to thank them for these contributions when the OMI-Merit grant ecard was going around.
I just had a look at their website and it says "the Foundation's primary mission: supporting transformational and collaborative medical research in the areas of Myelodysplastic Syndromes and Acute Myeloid Leukemia"
Interesting that they are helping us with CFS, we ae lucky to have their support!!
Now back to the Invest in ME Conference (don't want to hijack the thread), thanks for posting Sasha
Hi Merry!
I'm blown away by your story. I've copied in a bit about myelodyspasia from wikipedia at the bottom of this post. I totally think you are right. If you look at the Edward P. Evans Foundation website http://epefoundation.org/ and choose "Supported Research" (2nd tab across top menu bar), you can see the different projects that they are supporting.
The project at Griffith University is calleds "Investigation of Immunological and Genetic Features of CFS and MDS". They must be trying to tie these two together, yes?
This is huge!! If there is a link, we may be able to partner up with MDS associations somehow. Maybe we could get the government more interested in CFS if it is linked with MDS! I think this could use some investigating and would make a terrifc front page article here. I wonder if Dr. Koegelnik would have an opinion on it? It would be interesting if we find an MDS forum and ask people if they have ever had CFS type symptoms......
The myelodysplastic syndromes (MDS, formerly known as preleukemia) are a diverse collection of hematological (blood-related) medical conditions that involve ineffective production (or dysplasia) of the myeloid class of blood cells.[1]
Patients with MDS often develop severe anemia and require frequent blood transfusions. In most cases, the disease worsens and the patient develops cytopenias (low blood counts) caused by progressive bone marrow failure.
The outlook in MDS is poor, and 20 to 30% of patients will progress within a few months or years to refractory acute myeloid leukemia. The median survival varies from years to months. [2]