Julie Rehmeyer's 'Through the Shadowlands'
Writer Never Give Up talks about Julie Rehmeyer's new book "Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand" and shares an interview with Julie ...
Discuss the article on the Forums.

Mast cell disorders and ME/CFS (BBC medical item)

Discussion in 'General ME/CFS Discussion' started by charles shepherd, Mar 16, 2017.

  1. charles shepherd

    charles shepherd Senior Member

    Messages:
    2,239
    Likes:
    16,218
    GreyOwl, rosie26, SamanthaJ and 6 others like this.
  2. keenly

    keenly Senior Member

    Messages:
    684
    Likes:
    719
    UK
    I agree 100
     
  3. Ravn

    Ravn Senior Member

    Messages:
    132
    Likes:
    228
    If mast cells are implicated in ME then treating for mast cell activation could conceivably help ME symptoms. In theory. Does anyone have personal experience with this? I have both diagnoses, ME and MCAS, and so far mast cell meds have resulted in notable improvement in the more allergy-like symptoms (flushing, dermatographia) but no help at all for the classical ME symptoms like PEM. But have only been on the meds for a couple of months.
     
  4. mdb55

    mdb55

    Messages:
    5
    Likes:
    8
    Do you mind sharing which medications? I've tried over the counter ones for allergies.
     
  5. Ravn

    Ravn Senior Member

    Messages:
    132
    Likes:
    228
    H1 & H2 anti-histamines at very high rates plus sodium cromoglycate plus vitamin c (all as prescribed by doctor).
     

See more popular forum discussions.

Share This Page