Lipkin's Monster ME/CFS Study: Microbes, Immunity & Big Data
The Microbe Discovery Project outlines an ambitious new study by top researchers that has collected patient samples, but needs desperately funds to complete the work.
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London School of Hygiene and Tropical Medicine Biobank

Discussion in 'Active Clinical Studies' started by Jenny, Mar 23, 2012.

  1. Jenny

    Jenny Senior Member

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    I saw my immunologist at the Royal Free Hospital today. He invited me to contribute blood samples for a project looking for bio-markers in ME. It's likely to start in about 6 months time.

    I assume it's this:

    http://www.lshtm.ac.uk/eph/nphir/research/cfs-me/index.html

    (Could be something entirely different, but he did mention UCL as a collaborator.)

    I suggested including an assessment of Mannose Binding Lectin deficiency, since I and others seem to have this, and he replied that they would look into it.

    Sounds promising, but I hope they're building on all the previous attempts to develop a biomarker.

    Jenny
     
  2. Enid

    Enid Senior Member

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    Sounds very promising indeed Jenny - thanks for posting. (Bit hopeful approaching GP's for any ME numbers - doubtful if it is getting diagnosed still in too many parts).
     
  3. Firestormm

    Firestormm

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    Thanks Jenny. Do you think you will accept the invite? Let us know when you hear more about the study particulars, won't you? :)
     
  4. xrunner

    xrunner Senior Member

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    Thanks that's interesting. That's where I was first diagnosed.
     
  5. justy

    justy Donate Advocate Demonstrate

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    Thanks Jenny - interesting stuff and looks like they might actually get somehwere in the uk with finding immune abnoramlities etc, which we can hopefully wave in front of our GP's.
    Meanwhile in Wales we have no dedicated services whatsoever - ive only ever seen a GP and thats a handful of times.
    Looking forward to better times, Justy
     
  6. Jenny

    Jenny Senior Member

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    I've already accepted informally. They'll give me the details at my next appointment in Oct.
     
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  7. Firestormm

    Firestormm

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    Am wondering if it will be for the biobank. Look forward to hearing more from you. Good luck!
     
    justy likes this.
  8. Jenny

    Jenny Senior Member

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