Lipkin bad news folks

[ixchelkali]

another scottish paper breaks embargo http://www.heraldscotland.com/news/health/viruses-not-linked-to-me-risk.18909416

"Viruses have nothing to do with chronic fatigue syndrome (CFS), despite earlier evidence of a link, a study has shown"

Since the wording on all these is almost the same, it's clear they were working off the same script.

 

[alex3619]

Yes ixchelkali, hence my reference to churnalism, cut and paste journalism off press releases. Bye, Alex

 

[August59]

Sort of funny if in the end lipkin says they found a rouge strain of ebv as the potential cause.

If they had only been looking for it, but we will have to wait till Montoya's study or the CFI for this one unfortunately!!

 

[pollycbr125]

I have SMC press release page open I expect the release to appear here http://www.sciencemediacentre.org/pages/press_releases/

 

[alex3619]

Yes pollycbr125, that is where I was looking earlier and why I concluded the media releases were not from the SMC. Bye, Alex

PS unless of course they sent a release privately without posting it on their site.

 

[ixchelkali]

So I'm guessing the reason for the press conference was to make sure the message to the press was clear and accurate. And the UK press balled it up by jumping the embargo with their misinformation. If I were Lipkin, et al, I'd be really pissed off.

I'd say that pretty much sums it up. My guess is that the SMC is the source and that it's not accidental. My personal, humble opinion is that they have no shame and no integrity.

 

[pollycbr125]

Yes pollycbr125, that is where I was looking earlier and why I concluded the media releases were not from the SMC. Bye, Alex

PS unless of course they sent a release privately without posting it on their site.

I think they will have sent a release out but not posted on SMC website yet they are too clever to look bad breaking an embargo . will be interesting to see if the wording of such reports changes somewhat over the coming hours

 

[ixchelkali]

The only reason to pay attention to the spin is because of the politics. It needs to be countered. Twenty odd years of spin has led to almost no research funding - we get scraps. It has also led to systematic abuse of many thousands of patients by the medical system. So its important, but it has nothing to do with finding treatments or a cure directly.

I agree, but I also understand Kina. Sometimes we have to protect ourselves from all the negative emotional energy that reading crap news stories engenders. At least, I do. Sometimes I can't afford the energy that anger uses, and it can be hard not to get angry at the lies and misrepresentation. I jump in when I have the energy and pull out when I don't.

 

[alex3619]

Hi ixchelkali, it all depends on the person. Not everyone is up to dealing with bad spin all the time, but some of us try from time to time. I understand when people can't or think its a bad idea for them, I have had years where I could not have handled it at all. Bye, Alex

 

[K2 for Hope]

4 pages of posts in less than 4 hours. You guys are impressive!

and they didn't think we could do it....

 

[alex3619]

Not that impressive K2, I have nodded off several times over the keyboard.

 

[CFS-FIBRO-LYME]

Not that impressive K2, I have nodded off several times over the keyboard.

Funny, ironic and sad all at the same time. It's a kaleidoscope of emotions!

 

[pollycbr125]

http://online.wsj.com/article/SB10000872396390443720204578002180958369660.html

 

[urbantravels]

Since the wording on all these is almost the same, it's clear they were working off the same script.

Are the papers in question part of the same syndicate?

 

[ixchelkali]

Wall Street Jounal, Amy Dockser Marcus: http://online.wsj.com/article/SB10000872396390443720204578002180958369660.html

 

[urbantravels]

http://well.blogs.nytimes.com/2012/09/18/chronic-fatigue-syndrome-back-to-square-1/

Tuller's up - it's just a quick one - and I HATE THAT HEADLINE WITH THE BLINDING RAGE OF TEN THOUSAND SUNS but I know Tuller doesn't write his own headlines and whoever does at the NYT is a knucklehead.

(adds "Back to Square 1" to "stupid press cliche Bingo")

 

[Lynn]

Well, it made me cry. I think it is about a lost hope.

Lynn

 

[pollycbr125]

can anyone see the paper yet ?

 

[pollycbr125]

http://retractionwatch.wordpress.co...-and-chronic-fatigue-syndrome/?forumid=331851

 

[alex3619]

lol, mBio hasn't published yet, NYT is jumping the gun on that bit.