Countrygirl
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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auto-antibodies are mentioned... does anyone have more details, like which ones are tested?
Dr. Davis said that he plans on studying mold, but that he plans to develop a more accurate testing protocol.One of the interesting questions was from the Incline Village survivor. He suggested that every person who became affected had been/lived in a sick building. And he wanted to know if the panel looked into this.
The response, from what I recall, was that the testing was not reliable, and that Dr. Montoya was looking at this in one of his 4 studies. Is this what others got from the responders? I think it was Dr Davis who suggested the testing was at this point still questionable.
Where does this leave us with the testing?
I wonder where Davids has been since he posts once a week about and I have not seen anything as of late (I might of missed it)
He has a more accurate method, 10,000x increased sensitivity, but it will probably be years before its developed to be commercially useful.Dr. Davis said that he plans on studying mold, but that he plans to develop a more accurate testing protocol.
This was interesting. Many researchers say that they feel there is a genetic component because ME/CFS is more likely in family members, especially first degree...but what if it means that there was transmission. I don't like to think about being contagious, but at this time, we are unable to confirm or deny that it is.What I found interesting, and news to me, is the researcher who was developing an animal model for ME. This person got a needle stick injury and came down with ME, and then was aggressively treated from the start. They recovered. I think Montoya could elaborate more on this.
What I found interesting, and news to me, is the researcher who was developing an animal model for ME. This person got a needle stick injury and came down with ME, and then was aggressively treated from the start. They recovered. I think Montoya could elaborate more on this.
He has a more accurate method, 10,000x increased sensitivity, but it will probably be years before its developed to be commercially useful.
Yes, we need to be able to measure the actively toxic products of things.I think the test is for mycotoxins (from fungi) rather than fungi themselves?
Watch the video, then you will know all I know. This has not been discussed publicly, but its not the first time something like this has happened. I am guessing they did not wait six months, but we lack the information to know what really happened. In any case under SEID you can immediately make the diagnosis.I haven't watched the presentation but do you mean the researcher had a needle stick injury from the animal's blood (assuming the animal had ME/CFS?) and then developed it himself? When you say they were aggressively treated right from the start, does that mean they developed it immediately after the needle stick? I thought it took a minimum of being ill for six months before an ME/CFS diagnosis is given? Also, what were they treated with that caused the recovery? Was it an anti-viral? This seems like a very odd anecdote to me!
I do not think we can infer from this that it is contagious. They were developing a virus based animal model from what I can gather from the brief comment. Those viruses would be the ones they thought might cause ME.I don't like to think about being contagious, but at this time, we are unable to confirm or deny that it is.
What I found interesting, and news to me, is the researcher who was developing an animal model for ME. This person got a needle stick injury and came down with ME, and then was aggressively treated from the start. They recovered. I think Montoya could elaborate more on this.
Thanks @Countrygirl for posting this very interesting panel discussion!