T
thefreeprisoner
Guest
Hi all,
Here's a letter that I just wrote to my MP. Feel free to copy, paste and edit as you see fit, if you wish to write to your own MP in similar fashion. Now is a VERY good time what with Kay Gilderdale in the news.
Dear xxx xxxxxxxxxx,
I was shocked to hear about the recent trial of Kay Gilderdale following the suicide of her daughter Lynn Gilderdale who suffered from a severe form of M.E. (myalgic encephalomyelitis) which causes pain, muscle weakness, disturbed sleep, inability to balance and other cognitive difficulties.
I have suffered from this same condition at two points in my life (in 2004 and then again for the last 3 months) and have been housebound and generally unable to walk for most of that time.
However, there is nothing the doctors can do for me, because since 1959 when the disease was first discovered, the MRC has put barely any money into finding a biological cause for it (especially when compared with rarer diseases). There is no proper blood test and no cure. Treatments offered currently have only marginal effects and it some cases can make the condition worse.
Given that ME is more prevalent in the population than Multiple Sclerosis (estimates put the figure at 250,000 sufferers -- that's more than the entire city of Nottingham) and that life expectancy is reduced by 25 years, we need research and we need it urgently, before thousands more happy, hard-working people suffer the same fate as Lynn, dying slowly in agonising pain, unable to move.
I would love to be able to visit you for an appointment to talk about this but I am unable. Please call me if you wish to visit so I can explain to you more fully the effects of this condition and what might happen if it deteriorates.
In the meantime, please can you encourage the Government to allocate much more funding to research into the biomedical cause of M.E. This funding should represent the appropriate amount of money lost to the UK economy which runs into the billions due to sufferers' inability to work. Currently the amount of money allocated to M.E. research is derisory. If a cure for M.E. was found then many thousands of people would be released from reliance on benefits and back into full-time work.
Yours sincerely,
Here's a letter that I just wrote to my MP. Feel free to copy, paste and edit as you see fit, if you wish to write to your own MP in similar fashion. Now is a VERY good time what with Kay Gilderdale in the news.
Dear xxx xxxxxxxxxx,
I was shocked to hear about the recent trial of Kay Gilderdale following the suicide of her daughter Lynn Gilderdale who suffered from a severe form of M.E. (myalgic encephalomyelitis) which causes pain, muscle weakness, disturbed sleep, inability to balance and other cognitive difficulties.
I have suffered from this same condition at two points in my life (in 2004 and then again for the last 3 months) and have been housebound and generally unable to walk for most of that time.
However, there is nothing the doctors can do for me, because since 1959 when the disease was first discovered, the MRC has put barely any money into finding a biological cause for it (especially when compared with rarer diseases). There is no proper blood test and no cure. Treatments offered currently have only marginal effects and it some cases can make the condition worse.
Given that ME is more prevalent in the population than Multiple Sclerosis (estimates put the figure at 250,000 sufferers -- that's more than the entire city of Nottingham) and that life expectancy is reduced by 25 years, we need research and we need it urgently, before thousands more happy, hard-working people suffer the same fate as Lynn, dying slowly in agonising pain, unable to move.
I would love to be able to visit you for an appointment to talk about this but I am unable. Please call me if you wish to visit so I can explain to you more fully the effects of this condition and what might happen if it deteriorates.
In the meantime, please can you encourage the Government to allocate much more funding to research into the biomedical cause of M.E. This funding should represent the appropriate amount of money lost to the UK economy which runs into the billions due to sufferers' inability to work. Currently the amount of money allocated to M.E. research is derisory. If a cure for M.E. was found then many thousands of people would be released from reliance on benefits and back into full-time work.
Yours sincerely,
