yes
I want to share this.....
Go if you can. I know some think it doesn't make a difference, but the problem has been that usually, no more than 20 patients show up. If there were 50 and they had to bring in extra chairs, then Dr. Koh, the assistant secretary of health would see that.
Also, they do keep up with how many watch live and how many watch after the fact. So, watch it if you can't go. And, if you can't watch it live, watch it through the CFSAC website after the fact. Even if you watch it through a YouTube recording later, pick a day and set your computer to view it, even if you aren't sitting at your computer.
In American politics, it's about numbers.
Everyone is becoming so active and working together and beginning to support each other now. The message is becoming the same. Dennis Mangan said he noticed at the SoK meeting that the researchers, physicians and patients seemed to form a family, albeit a somewhat dysfunctional family, but a family none the less.
A family may have squabbles and have baggage from past insults on each other, but in the end, we know we have more in common that binds us together. We must support each other. The fact of the matter is, up until now, we have only had each other.
As we cooperate and support each other's efforts, and join together on the points we agree, we become more powerful. Think of how powerful the Egyptian demonstrators were. There were many, many different groups. But they agreed on one point and they all worked together to accomplish that. In the end, they formed a coalition.
The United States were at one time just 13 colonies. Yet, they all got together and joined on one point, to be free of the monarchy.
Around the world, ME/CFS patients and organizations are now saying the same thing: more biomedical research into this disease (including retrovirus, of course). It is the one thing that we can all agree on. And if we all join together in giving that same message, it will be louder, so loud it can not be ignored.
So, submit testimony, watch the video live if you can and watch it through the CFSAC website later if you can.
With my ME/CFS brothers and sisters, I am strong, I will not be beaten down, I will endure, I will be heard, I am invisible no more.
(Why do I feel Martin Luther King is channeling through me?)
Tina
