International ME/CFS and FM Awareness Day Is On May 12, 2018
Thomas Hennessy, Jr., selected May 12th to be our international awareness day back in 1992. He knew that May 12th had also been the birthday of Florence Nightingale. She was the English army nurse who helped to found the Red Cross as well as the first school of nursing in the world.
Discuss the article on the Forums.

Lead an #MEAction Millions Missing protest on 25 May - 10 key US cities, or anywhere in the world!

Discussion in 'Millions Missing Campaign' started by Sasha, Apr 13, 2016.

  1. Sasha

    Sasha Fine, thank you

    Messages:
    12,812
    Likes:
    34,305
    UK
  2. Dolphin

    Dolphin Senior Member

    Messages:
    10,737
    Likes:
    28,348
    I remember the fall-down protest in London in 2013 (?) which had 95 (?) people at it and had virtually no effect including no (or virtually no) media coverage.

    I think in many situations putting the time and energy into a fundraiser or fundraising on the street would be better. This could include giving out information.

    One of the reasons I think there has been a lack of researchers in the field is that there has been a lack of money raised privately. Government agencies are only ever going to fund a fraction of the potentially interesting studies that can be done and we need private money to make up the difference. And also to allow researchers get pilot data from small studies to help enable them apply for bigger grants. Whole countries raise very little privately for research. People blame governments for the lack of research but I think a big problem is the lack of money raised privately to support research.
     
  3. BurnA

    BurnA Senior Member

    Messages:
    2,086
    Likes:
    9,872
  4. Sasha

    Sasha Fine, thank you

    Messages:
    12,812
    Likes:
    34,305
    UK
  5. BurnA

    BurnA Senior Member

    Messages:
    2,086
    Likes:
    9,872
    OK - maybe its me but i find it confusing when there are two threads so closely related. End up discussing the same thing on both.
     
    Sasha likes this.
  6. Sasha

    Sasha Fine, thank you

    Messages:
    12,812
    Likes:
    34,305
    UK
    Sorry - couldn't see a way around it! One action asks people to send shoes if they can't turn up, another action asks people to organise demos in their own cities... I think these different actions are going to appeal to different people and so needed separate threads.

    Sorry it's confusing!
     
    *GG* likes this.

See more popular forum discussions.

Share This Page