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LDN on the NHS

Discussion in 'General ME/CFS Discussion' started by Mascotte, Nov 10, 2018.

  1. Mascotte

    Mascotte

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    Hi all has anyone been able to get LDN on the NHS (UK) as have read it is widely available in the USA, but from what I have been reading it doesn't seem to be so widely prescribed here in the UK ? I am looking to ask my doctor the next time I see her.
    I have read a lot of the postings on here and it seems it works for some but not all ( like most meds I think).
    At the moment I take tramadol, dyhidrocodien and preagaplin (sorry for the spelling) but I'm still in pain and not sleeping, so would like to give this LDN a try if I can get it on the NHS.
    Thanks
     
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  2. Learner1

    Learner1 Administrator

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  3. lafarfelue

    lafarfelue Senior Member

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    I hope you'll be ok tapering off the opioids prior to trying the LDN..?
     
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  4. Mascotte

    Mascotte

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    I do have an opioid resistance and because of this my doctor's are struggling to find pain killers that actually works for me and that's why I would like to try LDN
     
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  5. Moof

    Moof Senior Member

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    This is why I haven't tried it – I take tramadol. Not at high doses, but I've been on it for over a decade and tapering down significantly (which I do every so often if my tolerance level has crept up) produces some pretty boring side-effects. If I were more sure that LDN would work to reduce pain, I might try it...but just for now, I'm not keen to swap a really effective drug that isn't causing problems to one that might give me side effects without even working.
     
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