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Landmark et al: CFS and experience with the Lightning Process

Marky90

Science breeds knowledge, opinion breeds ignorance
Messages
1,253
I`m writing a counterarticle as we speak. The focus will be on what we should learn from the IOM-article regardig what ME/CFS is likely to be, and what it is definitely not, why GET and CBT is not proved to work, and the need for updated knowledge top-down, and about how the skewed media coverage has thwarted peoples` view of ME/CFS.

If anybody has some relevant articles, I would appreciate it!
 

deleder2k

Senior Member
Messages
1,129


I will.

I realise that I was somewhat clear. She writes on Twitter that "we didn't find any serious side effects" (I guess she is referring to in her article, or perhaps the survey they did?). But it is misleading. I know that she knows about the report you're referring to.

UFVFcEtK.jpeg


https://translate.google.no/translate?sl=no&tl=en&js=y&prev=_t&hl=no&ie=UTF-8&u=https://twitter.com/Livelandmark/status/709326432581849088&edit-text=


Update: One of the two studies that she refers to in her article says that two persons got bedridden after LP.

Participants who experienced negative impact described a significantly reduced level of functioning, which for two of them meant that after the course went from being able to stay up to become bedridden most of the day.

The study is in Norwegian, but can be translated with Google translate. It is hard for me to interpret this in any other way than what it is: a big lie. At best it is unethical cherry picking.

Source: Sandaunet A-G, Salamonsen A. CFE-/ME-pasienters ulike erfaringer med Lightning Process. Sykepleien Forskning 2012; 7: 262 – 8. https://sykepleien.no/forskning/2012/10/cfe-me-pasienters-ulike-erfaringer-med-lightning-process
 
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TiredSam

The wise nematode hibernates
Messages
2,677
Location
Germany
I've recently read Barbara Ehrenreich's "Smile or Die" where she describes how companies in the USA hire motivational speakers to fire everybody up about personal responsibility and opportunity in adversity, to increase the chances of nobody complaining when employees are fired in their thousands six months later.

So when I went to the link in the above post and saw the glowing reference (I assume, can't read Norweigian) from the Norweigian administrative director of Shell, my first thought was "wouldn't it be great if somebody did a study to see if there's a link between companies hiring motivational speakers and announcing redundancies soon thereafter".

Then I googled "Shell Norway redundancies" and got this:

http://royaldutchshellplc.com/2015/04/23/shell-to-lay-off-staff-contractors-in-norway/

Thu Apr 23, 2015 3:29pm GMT

OSLO, April 23 (Reuters) – Oil producer Royal Dutch Shell will lay off 120 of its 900 workers in Norway and reduce its contractor force by 140 from 350, as low oil prices force it to cut costs, it said on Thursday.

So if Live Landmark visits your company, you'd better start looking for a new job :nervous:
 

barbc56

Senior Member
Messages
3,657
I just don't understand this. Phil Parker is considered, at the very least a charlatan, at best a quack!

This is like free advertising for Phil Parker.

Very interesting @Asa about Wiki and the advertising standards. This made me wonder if Phil Parker has ever received a reprimand by whomever (whoever?) does the reprimanding? I don't know what agency that would be or whether at the state or federal level.

Sorry severe brain fog today.
 

barbc56

Senior Member
Messages
3,657
Didn't want to add this to my above post as people might not see this while I'm editing.

This is from the skeptics dictionary.
If one views Phil Parker's video explanation of what the LP process is, one might not get a clear picture of how grandiose his claims actually are. In the video, Parker regurgitates the common quack mantra about the mind being able to control the body so that the body can heal itself. When he gets to the part about proof that LP works, the screen shows a "censored" message and there is a voiceover lamenting the fact that he's cut out the original scene because it didn't pass scientific muster with those censors who require actual scientific studies.
http://skepdic.com/lightningprocess.html

I haven't had a chance to watch the video so I don't know if he is doing this as sarcasm or if anyone has actually censored the video. From seeing all the crap available on YouTube, I would think it would be the former. Whichever, it's still telling.
 
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barbc56

Senior Member
Messages
3,657

Wow! Thanks! :thumbsup:

In the states it looks like it's the Federal Trade Commission.

In the United States, the Federal Trade Commission regulates advertising at the federal level.[8] States and more local political divisions can have their own laws on the subject
.

https://en.m.wikipedia.org/wiki/Advertising_regulation#United_States_of_America
 
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Snow Leopard

Hibernating
Messages
5,902
Location
South Australia
Someone should probably point out that there is no such thing as a Randomised controlled trial when comparing non-pharmacological "therapies" like this. Given that there is no possibility of a double blinded control group.

https://en.wikipedia.org/wiki/Randomized_controlled_trial

Not all randomized clinical trials are randomized controlled trials (and some of them could never be, in cases where controls would be impractical or unethical to institute).
 

jimells

Senior Member
Messages
2,009
Location
northern Maine
And now they are practicing this nonsense on our young people in the UK.

Reference
ISRCTN81456207 : Specialist Medical Intervention & Lightning Evaluation: Comparing specialist medical care with specialist medical care plus the Lightning Process for Chronic Fatigue Syndrome or Myalgic Encephalopathy (CFS/ME)
Overall trial status
Completed
Recruitment status
No longer recruiting

Chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME) is relatively common in teenagers and can be serious. Over half of teenagers with CFS/ME are bed bound at some stage and on average, they miss one year of school. Little is known about how to treat CFS/ME and even though over 250 teenagers a year use the Lightning Process as an intervention for CFS/ME, no studies have investigated whether it is either effective or safe.

This is an Ester Crawley study.
 

PhoenixDown

Senior Member
Messages
456
Location
UK
Someone should probably point out that there is no such thing as a Randomised controlled trial when comparing non-pharmacological "therapies" like this. Given that there is no possibility of a double blinded control group.
They don't even bother with single blinded experiments with sham CBT or sham lightning processs - Ask your self what are they afraid of?