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Lancet: KCL- Mortality of people with CFS: a retrospective cohort study (extra suicide risk)

Dolphin

Senior Member
Messages
17,567
Some in ME/CFS field incl some proponents of CBT +/or GET actually recommend against giving patients much support :(
Nor would I like to depend on them finding effective disease-modifying treatments or cures. :(

Consequently, while we should diagnose and treat mood disorders appropriately, I see them as only one stopgap measure in preventing suicide in ME/CFS. Other stopgap measures include managing symptoms to the best of our ability and addressing the unmet social needs of patients, whether they be concrete, like providing written support for food/ housing benefits, or more abstract, reinforcing the validity of patients’ experiences with their family present or referring them to a support group to decrease social isolation. We can also work on increasing research funding and providing more accurate information to healthcare providers to give patients some degree of hope for a better future. Ultimately the best way to prevent suicide in ME/CFS will be to find effective disease-modifying treatments or cures for it.
 

Valentijn

Senior Member
Messages
15,786
Interesting perhaps that 3 of the 4 cases with M.E. were male. Most M.E. sufferers are female, aren't they?
It might be due to the greater social condemnation for a man with a "psychosomatic" disease which is supposed to mostly hit women. And the social expectation that men be employed and have an income, when women tend to get a little more slack in that regard.