Gingergrrl
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I've been digging around on the web for the last 6 months looking at treatment options, doctors, etc.. and decided it's going to take me screaming bloody murder to get anything done around here.
So in your opinion, who are the top 3 docs in the US for this condition?
@LHG I just wanted to commend you on being such a good advocate and loving wife for your husband and not to give up hope. I agree that it often takes "screaming bloody murder" to get anything done with getting a doctor to listen to you so this is not always a bad thing!
As far as the top three docs in the US, it is hard to say b/c each have slightly different focuses. I recently had my first appt at Open Medicine Institute (in Northern California) and was very happy with the testing and care that I received. For me it was a 6-7 hour drive and well worth it. I have not been to any other ME/CFS specialists so I cannot speak of others on a personal basis but am sure that others will chime in.
Also, look at the section of the forum on doctors or do a Google site search and you will find a lot of info. Best wishes to you and your husband.
ETA: I noticed in your original post that you said you live in Scotland but are American. Do you have family in a certain part of the US b/c if so, staying with them could eliminate cost of hotels and might help you narrow down which area to see a specialist.