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Jim Faas comments on 'renowned' PACE trial

Discussion in 'General ME/CFS News' started by MeSci, Jul 15, 2017.

  1. MeSci

    MeSci ME/CFS since 1995; activity level 6?

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    Cornwall, UK
  2. Londinium

    Londinium Senior Member

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    Not sure what Google Translate is aiming for here, but I think we can all agree that PACE is for no sickness kitten :D
     
  3. lansbergen

    lansbergen Senior Member

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    how can I get the dutch text?
     
  4. Marc_NL

    Marc_NL Senior Member

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  5. Solstice

    Solstice Senior Member

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    Sikkepit is sorta similar to iota. The meaning of the first sentence is roughly: The renowned PACE trial on basis of which GET and CGT are offered as first treatment for the disease, apparently doesn't contain an iota of merit. Or something along those lines.
     
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  6. Solstice

    Solstice Senior Member

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    He is calling for corporate doctors and insurance doctors to get out of the game for now, untill there's some solid evidence of what does and what doesn't work. The gist I got was, you can diagnose them but don't force any treatments upon them. Which all-in-all is a good thing imo.
     
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  7. A.B.

    A.B. Senior Member

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    Sounds like somebody is smelling something and it isn't a thing of beauty.

    We seem to be reaching the point where people are trying to distance themselves from the PACE scandal and CBT/GET.
     
    Last edited: Jul 15, 2017
  8. Grigor

    Grigor Senior Member

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    I think it's quite big thing in the Netherlands. He really is the first, besides Mark Vink, who has written about PACE like this. On top of this he is a big name at the unemployment office UWV and even criticises them that ME patients need to go to court to justify themselves and need fight against the whole idea that CBT and GET could potentially cure them. He's also the former president of the insurance physicians association.

    James Coyne will be speaking at a conference for insurance physicians in the north of Holland this year. It will obviously be about PACE and CBT/GET.

    I think this asks for a famous wooden clogs dance.

     
  9. AndyPR

    AndyPR Senior Member

    I think we should begin to adopt the Wooden Clog Dance Scale in order to indicate the importance of events within the ME world, with the retraction of PACE as perhaps being worth two Wooden Clog Dances - although I'm not sure any one could actually cope with that... ;)
     
  10. Grigor

    Grigor Senior Member

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    The PACE trial authors will do the dancing.
     
  11. Valentijn

    Valentijn Senior Member

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    The quality of that one looks more infamous than famous :D Though it is nice to see such a traditional dance updated to represent transvestites and same-sex couples :love:
     
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  12. Valentijn

    Valentijn Senior Member

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    Something interesting I noticed after a recent visit to the Radboud University in Nijmegen is that our favorite Dutch quacks are no longer headquartered there.

    Maybe their bad work has finally caught up with them, and there's been a bit of house-cleaning going on? One of their recent papers even went so far as to impute recovery/improvement for patients who were literally not treated at all :jaw-drop:

    Perhaps the winds really are shifting, even here.
     
  13. A.B.

    A.B. Senior Member

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    Healed by the presence of the therapist during the first visit? ;)
     
  14. thijs

    thijs

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    Grigor likes this.
  15. Solstice

    Solstice Senior Member

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    I wonder if they're still getting new patients in. I've been telling new patients I know to avoid them like the plague. Can't be the only one to do that.
     
  16. Sean

    Sean Senior Member

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    Proof of morphic resonance? :woot:
     
  17. Alvin2

    Alvin2 If humans were rational...

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    this sounds like inspirobot level wording :woot:
     
    Last edited: Jul 16, 2017
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  18. Grigor

    Grigor Senior Member

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    @Valentijn Hans Knoop the head of the quacks and friend of the PACE authors in Nijmegen just got promoted to professor of evidence-based psychological and behavioral interventions for medical conditions and somatic symptoms at the AMC in Amsterdam.....evidence based.... Tsss.

    Anyways they moved with him. I'm not sure if Nijmegen stopped working for and with him. I would be surprised?
     
  19. Barry53

    Barry53 Senior Member

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    I would guess that ...
    probably translates to ...

    infamous PACE trial.
     
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  20. Grigor

    Grigor Senior Member

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    Emile Keuter a Dutch neurologist responded to Faas's blog. Stating that the the ME community is militant and that we in some way choose to not respond to CBT and GET.

    I responded. I will put a link to my blog on his. Grr

    http://anilvanderzee.com/neurologist-m-e-militant/
     
    Binkie4, Joh, atleje and 19 others like this.

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