IVIG and Working

[Learner1]

This message is for Learner1

I responded to your conversation @scarlet56

Note that you can put an @ in front of a user name to tag them, as I tagged you.

 

[frozenborderline]

Interesting. IVIG seems really intense, would it be better to get it at home than in hospital because of the time required if doing a careful/slow infusion to prevent reaction?

 

[Gingergrrl]

Interesting. IVIG seems really intense, would it be better to get it at home than in hospital because of the time required if doing a careful/slow infusion to prevent reaction?

It truly depends on your individual situation. At the time I started IVIG, I was considered too high of an anaphylaxis risk to do IVIG at home. I did it at an outpatient infusion center that is connected to the hospital where my mast cell doctor works. If I'd had anaphylaxis from the IVIG (which I never did in two years but in the beginning we were extremely careful), I would have been 5 min away if I needed to be transported to the Emergency Room.

 

[Learner1]

Interesting. IVIG seems really intense, would it be better to get it at home than in hospital because of the time required if doing a careful/slow infusion to prevent reaction?

I just had an infusion at my house that lasted from 9:30am to 6pm. I do it at a much slower rate than most people, and am given Solumedrol and Benadryl (and an NSAID if I need it) and I have an Epipen and an "anaphylaxis kit" and am treated by specially trained, experienced nurses who watch me carefully and take vitals every 15-20 minutes.

But I am at home, where I can go outside, sleep in my own bed, eat whatever I want whenever I want, throw a load of clothes into the dryer, watch TV, etc. Beats a stuffy hospital...