And a hug from me too:
As a mother who has ME and has looked after my daughter, now aged 36 since she go ME at 16, I'd say, please, hang in there.
We hang on to the hope that there will be a treatment one day. I have had to watch my daughter miss out on education friends career and all the things you and she might have expected. It's so unfair. But there is still the possibility of finding small bits of pleasure in daily life. Please don't give up.
Do you have any small things you are still able to enjoy, or at least find a passable way of spending the days? We both find listening to books on audible helps pass the time - though I confess I keep having to go back a chapter as I've fallen asleep or lost concentration - makes the book last longer!
I find small creative things help too - I sometimes lie in bed making up silly limericks - there's a thread on here where people share them!
And it's OK to be grumpy too. I hate it when people tell me to count my blessings or think positive.
I'm one of those contrary people who is allergic to being told to smile, but I laugh at grumpy cat:
Sorry, this is probably not helping. I wish I could wave a magic wand and make you better. I'm relying on Ron Davis or one of the other fantastic researchers to wave their magic wand sometime soon and make us all better.
Love and hugs, Trish