Hi everyone. I've just joined this forum, I'm glad I found you! I have been dealing with this crazy ilness for about four years now, I am 32 but I consider myself as dead since age 28. it has kept getting worse and worse. At first doctors didn't know what I had, I got every single medical exam available on earth MRIs, EMG, blood work, muscle bipsies, evreythig always comes back normal! I have been tested for MS, Myasthenia gravis, myopathy, ALS, you name it... I do not have ny of these, according to doctors. Yet after three years of excruciating pain, muscular and nerve pain, from head to toes, i developped since the last two months a very severe weakness, to the point where I can hardly stand on my feet, I can't hold anything in my hands, my legs feel like noodles, I can't sit down either, as my back, neck and shoulders muscles are too weak to support me. I also developped this very weird feeling as if I am weightless, like a balloon, and as if my limbs are not there, not part of me anymore... I also noticed some muscle atrophy in my hands and in my feet, it is clear to me that those muscles have atrophied but my neuro said I do not have amyotrophy as I do not correspond to the "scientific criteria" of amyotrophy (again just got nother EMG and another muscle biopsy both negtive last week). So he is sure I have chronic fatigue syndrom. But as I have been reading through the Internet, no one seems to complain from such weakness, you all seem to still be able to have some sort of life, and not a weakness as debilitating as mine... Do you think I could still have CFS or do I have some mysterious new disease that no test can identify, because that is what I am thinking... Thanks a lot for your help. Also, I did not have any normal day since everything started so absolutely no sign of remission whatsoever, if I had CFS wouldn't I at least experience better days? Do you lso experince a feeling of having water thoughout your body?