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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I would appreciate it if anyone could link me to it...
I think the term Chronic Fatigability is more accurate.
I understand it is classed as a Neurological illness - but i cant find bullet points to explain why.
Thank You.
Hi allyson ,
Sorry, my mushy brain.
I cant get it straight in my own head why this is not a 'fatigue condition'
I understand though that people didnt refer to my mothers cancer as a fatigue condition etc.
So i think the neurological condition causes chronic Fatiguability plus a whole host of other symptoms.
I want to steer away from the incorrect notion of 'Chronic Fatigue'...
Is that any help ? - not exactly sure what I even mean yet....
Cognitive impairments associated with CFS and POTS
Lindzi Shanks, Leonard A. Jason*, Meredyth Evans and Abigail Brown
Center for Community Research, DePaul University, Chicago, IL, USA
http://forums.phoenixrising.me/inde...pairments-associated-with-cfs-and-pots.23283/
I thought this, from Allysons paper was extremely accurate:
I do not think it can be described as a 'Fatigue condition'???
Without a doubt, I have Chronic fatigability....which can be brought on by mental or physical exertion, exposure to chemicals etc. however I have a Neurological illness which means I have a whole host of symptoms.
Confused.
This is not typical for most ME patients. In ME patients, laying down relieves only OI symptoms, and PEM and other issues (swollen lymph nodes, food intolerances, etc), will remain.For example if I spend most my time lying down - getting up only for bathroom (warm bath not shower), quick meal preparation and essentials and spend the rest of the time - eg on the laptop, watching movies- lying down rather than sitting - then all my symptom disappear apart from reflux/IBS.
SO i feel totally well - indeed quite good, mentally and physically
The illness will be in the form of a crash - duration of vertical time often related to degree of symptoms.