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Dry needling helps my pain, but like everything, it is a temporary relief. Similar to acupuncture except it goes into the muscles. A pt does it.
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I checked with a representative with Skins (it is international) and they sent me the compression levels for their clothing. It is fairly low and probably not the best choice for the type of compression we need. They said that all their garments had this same compression.
Here is what they wrote:
-Ankles: 20 +/- 3 mmHg
-Calves: 18 +/- 3 mmHg
-Lower Thigh: 15 +/- 2.5 mmHg
-Upper Thigh: 9 +/- 2 mmHg
Too bad, as their tights look very comfortable.
Best.
Sushi
Nike has compression shorts. I ordered some for my daughter.Thansk for that Sushi - yes i havnt treid them bu saw aomwnon in them yseterday - leggins and they look great too
Actually though I find i do NOT need much comprssion - even very light helps
so normal off the rack 3/4 leggings ( cooler length) and singlet of stretcy clingy fabric - and cardiy of same really seem to help. The main thing is the do need to cover the abdomen - legs whn standig up too.
I see some footy teams here are using special new fabric that stays cool too - one that was develpoed for astronauts
staying cool seems to be the new thing in professional sports -they are using refrigeration units for the players here at half time etc
if we could all wear an undersuit like that - hello superman - we might all be able to manage a lot better and have feer crashes
of course the coolness is extra important for us to prevent vasodiatation and to stop the need for extra peripheral blood flow to cool us down.
I am getting a chillow to take to he gym to lie on my abdo to keep me cooler - meantime i take a frozen ottle of water and rest it on me and drink it as it melts....lessens crash effect next day.
Sharon,
Thanks for your excellent input. I happen to agree that most ME/CFS is rooted in some form of connective tissue disorder (I hesitate to use the term EDS, because it has so many variations!) Your posts present a strong case. It is just so damned depressing, because there is no pharmacological way to treat something as widespread as weak tissue syndrome.
EDS AND THE EYES
I FORGOT WHO ASKED ABOUT EYE issues but this article says the eyes are nearly all made up of collagen so affected often in EDS
It meantions Photophobia as a symptom
http://www.newtons-online.net/histories/ehlers danlos eyes.pdf
Ally
Here's another link as well..http://www.totaleyecare.com/ocular-complication-ehlers-danlos-syndrome-1.htm
Ally,
Another interesting feature of EDS. I wonder if EDS patients have a higher rate of glaucoma? That's too much pressure in eyeball.
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Ally,
Another interesting feature of EDS. I wonder if EDS patients have a higher rate of glaucoma? That's too much pressure in eyeball. No one knows why the fluid ducts in the eyeball stop working. Could it be they collapse on themselves? Enquiring minds would love to know.
Having EDS reminds me of the Modern English song "I'll Melt with You." That's what's happening to our bodies. (Except, it isn't "getting better all the time now.")
Hey SHerlock !Hey, Allyson, you have 633 replies for this thread. Maybe that's a record. What did you win?
Hey, Allyson, you have 633 replies for this thread. Maybe that's a record. What did you win?
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and genetic studies into ME now happening it seems ....
http://www.cortjohnson.org/blog/201...reatments-for-chronic-fatigue-syndrome-mecfs/