Moderator Note - This thread started with the following post about raising public awareness of risks to the blood supply from CFS patients, by threatening to donate blood. However, please read through the entire thread as the message has been modified to take a pledge NOT to donate blood, and use that pledge to help raise awareness of CFS as a potentially infectious disease. I can't ignore it any longer. I am ANGRY! I have not been this angry since I read 'Osler's Web'. I am no newbie and thought I had gotten pretty good at swallowing my anger. I have been subscribing to CFS forums since the mid '90's. Then, every few years when, as a group, our anger and frustration reached a boiling point, SOME CRAZY PWCFS would suggest a BLOOD DRIVE. Well, today I am that crazy PWCFS! I am bracing myself for an onslaught of criticism for my suggestion. But please just let me finish. I went to the meeting in DC last year and I listened to my government tell me they were "considering" locking us out of the blood supply. Weeks later, it sent out the word that CFS and XMRV were still "unproven" and so the blood supply did not need to be protected from us. I DISAGREE! Is it time to force their hand in front of the world? They know we are too sick to want to give blood and so they can afford to ignore a potential medical weapon of mass destruction - ME/CFS. Although my first choice would be to cue up outside the best teaching hospitals in all the major cities in the world, with protest signs and news reporters in tow, I know that is just a dream. I also know that some countries are ahead of the USA and have already banned PWCFS from their blood supply. Of course in GB, you can't give blood if you say you are feeling poorly. Apparently they think they can effectively ban ME/CFS blood while purporting to just be looking out for the patients? I know I don't have days that I don't feel poorly. BUT, it is ME/CFS Awareness month and the CFSAC meeting is May 10th. That day the US government will give us an update on the blood safety and XMRV. I think we should be prepared to hear that XMRV is still unproven. If they have refused the last 4 WPI research studies because it is unproven can we expect any other verdict? ( That is what really tipped the scales for me - I am really pissed off). So we need to "virtually" march. We could flood the CDC or HHH main switchboard with phone calls at a specific time of day, every day, all month. Just to remind them that May 12th and the month of May are International ME/CFS Awareness day/month and we are pretty certain they don't know it! But I think we should start an online petition - take the pledge. I pledge to "celebrate" International ME/ CFS Month by going to my local hospital and donating my blood. I envision we could have hundreds of signatures by the end of the month and on May 31st we will pledge to donate our blood to our country's blood supply UNLESS my government steps up and protects the blood supply. We can consider how we will act up to May 31st but as we think it over the petition will get more signatures and, hopefully, some press. Of course, the ultimate goal is to NOT give blood. But we will have all month to consider our actions and hopefully, there will be some other interested parties - doctors, scientists, government officials, and the PRESS. Am I the only one angry enough to take the pledge?