Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Is it possible to crash for months or is this an indication that I am losing function permanently?

Discussion in 'General ME/CFS Discussion' started by Jackb23, Nov 8, 2018.

  1. Jackb23

    Jackb23

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    Over exerted myself for about 2 months because I was running on Adrenalin and couldn’t sleep from the ketamine infusions. But now I find myself light headed, slumped over, not wanting to move at all. It came on suddenly like a change of tides
     
    Last edited: Nov 8, 2018
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  2. alex3619

    alex3619 Senior Member

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    In my personal experience, either. Take care of yourself, pace everything, and look to a diet high in antioxidants, would be my suggestions.
     
  3. hellytheelephant

    hellytheelephant Senior Member

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    Definitely possible to crash from pushing too hard. The good news is, that this illness is almost impossible to predict! Rest up, give yourself every possible chance to improve. Take care, H
     
  4. Seven (formerly lnester7)

    Seven (formerly lnester7) Seven

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    Either is possible, set your baseline to your new normal to avoid further damage. I have been able to go back to base eventually but it is hard work to rehab.
     
  5. Jackb23

    Jackb23

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    I know the treatments for this illness are completely individualized, but what are some of the things that you did to help yourself recover.
     
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  6. Seven (formerly lnester7)

    Seven (formerly lnester7) Seven

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    I am trying to document that to help others, since I have done it so many times but is a long explanation. If you want to start peaking on the hows to videos or call me by Skype ( IM me) so I can give you my contact and I apologize becuase it is too much to write but I do not Mind at all to share. I am trying to spread the word.
    How to Pace / "Exercise” with ME/CFS
    https://www.youtube.com/playlist?list=PLqeMZ2yerdSC6KbWGs3GPiNGbh6_I8G85

    I will load one evening today on strategy for getting better. So start w that . Then based on what bothers you the most you go from there.

    I am not doctor but my humble opinion for those with orthsotatic intolerance is where you get the biggest bang for the money.
     
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  7. lauren108

    lauren108

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    I recently experienced a bad crash at the beginning of September (from 80% to 30%.) I've felt about 10% better these past few weeks. I know this is so annoying to hear, but it takes time to get back to your baseline. Pacing has helped me. As well as intermittent fasting and trying to get quality sleep at night. Also I've been eating no grains or processed foods and lots of organic veggies. It's super frustrating. Like you said... a sudden change in tides for sure. You will get through it!!! Good luck!
     
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  8. joanierav

    joanierav

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    hi. the answer could be no or it could be yes. depending on the individuals strength and health. i would hit the bed and stay there until i feel well enough to leave it. then i would eat very nutritiously, chicken or fish, carbo, and protein. the old fashion diabetes diet that all doctors perscribe. lots of home made soups. then b-12 shots subq, once a wk. some good old fashion supplements, b, c, d, and multi. if still not better, then find yourself a good doctor, who will put you on disability..

    good luck, joanie
     
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  9. Moof

    Moof Senior Member

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    I crashed for a year and a half after I had to give up work (I'd really overdone it and had been running on fumes for months). It was extremely frustrating, but ultimately the only thing that really helped was taking really good care of myself and resting, resting, resting... I thought it would never come to an end, but it did.

    During the last six months of it, I found some simple, lightweight, repetitive craft work to do whilst I was awake to stop myself being so bored. That helped hugely, as I was at least producing something I could sell, even if I could only do it for a few minutes at a time. I hope you get to the end of your crash soon!
     
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  10. jesse's mom

    jesse's mom Senior Member

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    @Moof has something there, I learned to knit in the first years of getting really sick. Very helpful!

    I am supplimeting and it is helping. I was getting way better, like cooking occasionally, and going to see a play without crashing. I got a sore throat and the beginning on bronchitis and I am in bed. But this time the bug did not put me in the hospital, nor am I crashing. there is hope, and there are really brilliant people researching and I hear of people in remission more and more lately.

    Rest before you think you need to, eat well. Try meditation to calm the mind.

    All the best to you!
     
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  11. Seven (formerly lnester7)

    Seven (formerly lnester7) Seven

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    Here is the video I was mentioning earlier
    ME/CFS Treatment Strategy | Get Well Plan
     
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