Is chronic fatigue syndrome finally being taken seriously?

[worldbackwards]

It's not over till it's over.

Our theme tune...

 

[meandthecat]

I thought this was for the US website but it seems the author is British. Are there any namby-pamby, wishy-washy, bleeding heart liberals who can tell us if this is the print edition?

Yes it is

The Liberal that dares speak his name

 

[Roy S]

https://twitter.com/i/web/status/716946121965375492

 

[Sidereal]

Let's give this guy lots of likes.

 

[Snowdrop]

When David Tuller's, and James Coynes Julie Rehmeyer articles/blogs came out I and I believe others twittered them with commentary to the guardian.
I don't know how much that has to do with the press we're seeing now and I see that the author knows someone with ME.

I am so thankful for the people like DT/JC/JR etc who helped create what appears to be a crack in the dam of PACE and are helping to create a more accurate narrative of our illness.

Let's let David Cox see our appreciation. I'm sure as this might be new to him (friend fell ill in 2014) he's on a learning curve with this illness too.

If we get a response article from Crawley or someone it will be interesting. As their propaganda articles keep coming the comments of people here have become well honed and very well done. It would seem to be counterproductive for them at this point.

 

[mfairma]

This is good for what we're used to, but it really should have been better. It muddles a bunch of important issues for the public.

 

[Bob]

Did everyone notice the PACE trial letter written by the ME Association that the article links to?
http://www.thelancet.com/journals/lanpsy/article/PIIS2215-0366(15)00546-5/fulltext

It also links to the Institute of Medicine report.
http://www.meresearch.org.uk/news/institute-of-medicine-report/

 

[Sasha]

580 comments!

 

[sarah darwins]

580 comments!

Sasha, as I know you're a connoisseur of 'tired woman' images to illustrate me/cfs ... the Guardian's article has an image of a woman on a bed (nice negligée!) which is credited to Getty Images. If you go to the Getty images site and look up cfs or chronic fatigue you don't get that image but if you search on "tired woman on bed" up it pops! Gawd knows what goes through the minds of newspaper picture editors when they're seeking illustrations, but I'm afraid "tired" is front and centre of their minds.

 

[Jonathan Edwards]

I thought this was for the US website but it seems the author is British. Are there any namby-pamby, wishy-washy, bleeding heart liberals who can tell us if this is the print edition?

@worldbackwards Now you wouldn't be being just a little bit namby-pambist there would you? You might get written about in the Guardian discriminating against people like that. All self-respecting Guardian readers with any sense don't take the print edition cos your fingers get all black when you read it.

 

[Sasha]

Sasha, as I know you're a connoisseur of 'tired woman' images to illustrate me/cfs ... the Guardian's article has an image of a woman on a bed (nice negligée!) which is credited to Getty Images.

Yes, I was thinking how like me she looked (give or take twenty years and the posh negligée, etc.)!

If you go to the Getty images site and look up cfs or chronic fatigue you don't get that image but if you search on "tired woman on bed" up it pops! Gawd knows what goes through the minds of newspaper picture editors when they're seeking illustrations, but I'm afraid "tired" is front and centre of their minds.

TBH, I think that "tired" is not a bad search term, and wouldn't be a bad search term for MS or similar diseases. The thing is, they're looking for search terms that will give them a pic of somebody lying down looking knackered and because photographers don't tag their images with "myalgic encephalomyelitis" or "multiple sclerosis", that's actually reasonable as one of the search terms.

The ones that I was forced to use, after much experimenting, were "depressed", "wheelchair", "bed" and so on. Like me, they may well be thinking of the image they need (someone lying in bed looking ill) and trying to think of the search term that will find such pix among the millions in the picture libraries.

 

[Kati]

Wessely is probably furious that the author didn't get this article approved by Science Media Center.

 

[Snowdrop]

I expect the picture search issue is a system problem. The person responsible may have tried to get an appropriate pic but appropriate search words might not turn up anything useful. Hopefully, this too is slowly changing (and yes faster would be nice)

 

[ukxmrv]

I thought this was for the US website but it seems the author is British. Are there any namby-pamby, wishy-washy, bleeding heart liberals who can tell us if this is the print edition?

It appeared in the print G2 section (that's a smaller part of the main printed paper)

http://advertising.theguardian.com/g2/

 

[Sasha]

703 comments!

 

[ghosalb]

This article implies that one can give CFS to others....I am not sure that is true. If other family members got it, it is probably a genetic predisposition rather than infecting each other.

 

[Mrs Sowester]

20,827 shares, 974 comments and still top 6 in the most viewed articles in the lifestyle section.
Good, eh?

 

[sarah darwins]

More than 1,000 comments ...

 

[beaker]

This article implies that one can give CFS to others....I am not sure that is true. If other family members got it, it is probably a genetic predisposition rather than infecting each other.

As someone who was in a cluster outbreak, I would disagree. The article talked about the RC outbreak , so it is probably based on that.

 

[aimossy]

The article has been amended.

"This article was amended on 5 April 2016 to correct two quotes from Professor Mady Hornig and clarify her affiliation."

http://www.theguardian.com/lifeandstyle/2016/apr/04/chronic-fatigue-syndrome-cfs-taken-seriously