Some cfs patients would rather have cancer. At least theres potential treatment, and a known outcome.
I was trying so hard to ignore this thread and probably actually will put the thread on ignore soon but this comment really got to me. There is not always a "potential treatment or a known outcome" with cancer and I just don't understand these words.
My step-daughter's mother died at age 39 of multiple myeloma leaving behind her then two year old child. She tried every known treatment, and experimental treatment, but still died. No one in the history of her family had MM and it is a mystery why she got it so young.
I have gotten IVIG for 19 months at an infusion center that is a cancer center. Many of the patients who come for their for chemo are in their 30's and 40's and have young children. 19 months later I have had improvements from the IVIG (and Rituximab) but they are now dead and their children have no parents.
My mom is fighting with every ounce of strength in her in the hospital as I type this b/c she has stage 4 colon cancer that has metastasized. She currently has had three surgeries, which were followed by near fatal sepsis and being on a ventilator for two weeks. She has had no food or water by mouth in over one month. She cannot breathe without BIPAP machine and is hooked to an NG tube, various drains and catheters, a PICC line, an ostomy bag, and I could go on.
My point in writing this is that people with diseases suffer. No one disease or illness has a monopoly on suffering and I do not understand the constant comparisons to cancer as if it is a walk in the park. It is not. There is not always a treatment or a known outcome.
