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In Memory of Anne Örtegren

Discussion in 'In Memory of ...' started by Countrygirl, Jan 7, 2018.

  1. Countrygirl

    Countrygirl Senior Member

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    Warning: Do not read this if you are feeling particularly low.
    [​IMG]

    Anne has just left us, I think in the last few hours. As I understand it, she decided to end her life at the Swiss clinic. She was a great advocate who suffered severely from ME and, like me, the intolerable buring skin problem whereby you cannot tolerate fabic, even silk touching your skin.

    She has wriiten this farewell to the ME community. It is very long but is an excellent article which could be shown to family and friends and others, who do not understand


    [​IMG]

    lobel.nu/anne.html


    copy and paste the link for the complete article


    [​IMG]
     
    Last edited by a moderator: Jan 11, 2018
    -Jessie- and bspg like this.
  2. maybe some day

    maybe some day Senior Member

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    Sorry to read about her suffering. Sounds like it was quite severe with no escape from symptoms. Thank you for sharing.
     
  3. Mary

    Mary Forum Support Assistant

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    Thanks for posting @Countrygirl - I can't "like" your post but appreciate it. I cannot imagine that level of suffering with no way to ease it --
     
  4. Nickster

    Nickster Senior Member

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    This is so very sad. The suffering and torture from this disease is indescribable. I respect her wishes to end the suffering.

    I commend her for bringing this public and hope the medical community is listening. I know that I have heard you Anne.
     
    MEMum likes this.
  5. Laurie P

    Laurie P

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    I hear you too, Anne. I’m so sorry that you suffered so much and that you couldn’t stay any longer. I understand. To her loved ones, I send my heartfelt sympathy and deepest compassion.
     
    Joh likes this.
  6. Mel9

    Mel9 Senior Member

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    So very very sad
     
    MEMum likes this.
  7. mariovitali

    mariovitali Senior Member

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    My God...May she rest in Peace...
     
  8. Dechi

    Dechi Senior Member

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    What a horrific life of suffering. :-( May she rest in peace.
     
  9. bombsh3ll

    bombsh3ll Senior Member

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    A dignified and courageous lady. God bless you Anne, may you be at peace now.
     
  10. boombachi

    boombachi Senior Member

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    So sad to read but also so important. Thank you for posting.
     
  11. Ravn

    Ravn Senior Member

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    A very courageous woman fighting to the last for the rest of us. You've been an inspiration. Thank you Anne and RIP.
     
    Joh likes this.
  12. lauluce

    lauluce as long as you manage to stay alive, there's hope

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    argentina
    rest in peace now, sister. your fight will always be remembered, and we'll carry on with it, for all our brothers and sisters with ME
     
  13. Countrygirl

    Countrygirl Senior Member

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    http://www.investinme.org/AnneÖrtegren.shtml
    [​IMG]


    Farewell to a Friend


    Today we had the very sad news that Anne Örtegren from Sweden had passed away.

    We considered Anne a dear friend.

    This news has come as a great shock.

    Our condolences to Anne's family.



    Anne Örtegren

    [​IMG]We never met Anne Örtegren in person. Yet we counted her as a true friend.

    When we look at the correspondence with Anne we can see it had started in 2007 - a year after we were formed as a charity.

    In all the correspondence that we had with Anne one always admired the resilience, the articulate nature of her commenting, her strength of character, her dedication and her determination to continue to battle this disease, to help others and to be there to make progress.

    We instinctively trusted and liked Anne from the first time we communicated. She was a rock – somebody whose opinion we valued and whose help and support we greatly appreciated. And she was generous with her support.

    Anne’s determination to help us and to encourage Swedish researchers to participate was a shining light for us.

    Her help behind the scenes – she was never one to promote herself or seek the limelight for the sake of it – led to real collaborations between researchers who met at our Colloquiums.

    She was an example to us all.

    An unimaginable void has now appeared in ME advocacy – someone who is irreplaceable.

    Though we knew Anne was suffering, and had been for such a long time, we were still communicating with her until very recently and had no knowledge of what was to transpire.

    Her spirit was just an inspiration.

    It is very difficult to read Anne’s last post (below).

    Not just because of the suffering and pain and hopelessness that she describes – but because Anne was so articulate in describing her situation – never with self-pity, always displaying the same courage that she showed in her life.

    We lost a friend today and it is hard to pick oneself up at this time.

    A light has gone out and the world is all the darker for it.

    When we lose a friend we lose a part of ourselves

    Yet there are those who leave footprints in one's memory whom one will always remember.

    Anne Örtegren is such a person.

    [​IMG]

    Farewell – A Last Post from Anne Örtegren



    Anne's facebook page is here https://www.facebook.com/anne.ortegren
     
    MEMum, -Jessie- and Jo Best like this.
  14. Gingergrrl

    Gingergrrl Senior Member

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    This is tragic and I am so sorry that you suffered so much, Anne. May flights of angels sing thee to thy rest and may your memory be a blessing to all who knew you.
     
    Pink, Countrygirl and MEMum like this.
  15. Each Day

    Each Day

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    Very sad, rest in peace.
     
    Countrygirl likes this.
  16. char47

    char47 Senior Member

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    I never had the privilege of knowing you Anne but our world is poorer without you in it. Rest in peace now free of suffering & pain, you will be sadly missed & your memory will live on among us all.

    I can barely tolerate the idea of another year as i am & i am nowhere near as bad as she & so many others. I take my hat off to anyone who endures very severe ME for a wk, never mind years on end. I couldn't have stood as long as she did I'm sure.

    :(
     
    maybe some day likes this.
  17. Jo Best

    Jo Best Senior Member

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    Thank you for posting @Countrygirl. It is some comfort to know that Anne had the support of her loved ones and expert assistance in bringing her many years of intolerable suffering to an end.
     
    Countrygirl likes this.
  18. Daffodil

    Daffodil Senior Member

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    crying

    wish I could have hugged her
     
    maybe some day and Countrygirl like this.

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