Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
Discuss the article on the Forums.

Improvements during menstruation?

Discussion in 'General ME/CFS Discussion' started by pibee, Dec 2, 2017.

  1. pattismith

    pattismith Senior Member

    Messages:
    1,466
    Likes:
    2,208
    During menstruation, both progesterone, oestrogens and testosterone drop, so it's difficult to say which drop benefits to you.

    Do you have head pressure? you may have a look in this thread:
     
  2. pibee

    pibee Senior Member

    Messages:
    230
    Likes:
    335
    Yes. Nonstop - 247- headpressure
    I never had a headache in my life before treating Lyme.
    What is spooky is that areas of my brain that hurt are the ones that dont work
    Example, when i have pain on top of my head bilateral... Approx in motor and premotor area - i have motor problems (apraxia), when i have in frontal lobe, i got problma with processing etc

    Before i had all these sympoms but never pain. Now just symptoms match pain locations.



    Link is not working btw


    EDIT:
    Ow, i assume your link was about intracranial hypertension.
    Yes i consider this very likely
    Especially because it got worse with doxycycline.

    But it is triggered during herxes. I got many other symptoms with herx, that went away eventually, but headache is very stubborn. Started w pressure but than transformed to headache + pressure.
    Neurologist didnt even bother to keep me in hospital , one of those who dont know what ME stands for.

    Seems i have this
    https://en.wikipedia.org/wiki/New_daily_persistent_headache
     
    Last edited: Dec 11, 2017
    pattismith likes this.
  3. pattismith

    pattismith Senior Member

    Messages:
    1,466
    Likes:
    2,208
    I believe I have intracranial hypertension, for me it was worsened by Doxy, by Macrolides and by Metronidazole. It has nothing to do with Heirx, it's a side effect of these antibiotics.
    You should receive a treatment for it.

    Lyme and EBV (mononucleosis) are known triggers for this condition:

    http://ihrfoundation.org/hypertension/info/C17/
     
  4. pibee

    pibee Senior Member

    Messages:
    230
    Likes:
    335
    For me it has everything to do with herx. I had lyme and bartonella [symptoms] for over 20 years and never had a headache.
    When I started to treat it with antibiotics I had severe herx reaction which gave me about 100 new symptoms I never had even for a minute (like fibromyalgia, neuropathies.... electricity through spine).. And as mentioned head pressure.

    I know. I was researching IH for a while, however I dont have neurologist who gives a fuck :( she just gave me Lyrica without even considering IH. And IH is so likely...
     
    Last edited: Dec 11, 2017
    pattismith likes this.
  5. pattismith

    pattismith Senior Member

    Messages:
    1,466
    Likes:
    2,208
    I think you musn't give up with this possibility. You can also talk about it with your GP and try to get a prescription for Diamox, it's worth a trial and is not so risky. I took only small doses and it worked.

    Do you have muscular symptoms?
     
  6. pibee

    pibee Senior Member

    Messages:
    230
    Likes:
    335
    @pattismith , Muscular like what?

    Not much, not really.
    Headache, cognitive problems and fatigue is "all" i have


    I am guessing IV saline is a big no no if you have IH?
    :-/
    I take extra salt, should I avoid?
     
    Last edited: Dec 12, 2017
  7. pattismith

    pattismith Senior Member

    Messages:
    1,466
    Likes:
    2,208
    Sorry I'm not a doctor pibee, I couldn't say if it may help.
     

See more popular forum discussions.

Share This Page