• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Important Survey

taniaaust1

Senior Member
Messages
13,054
Location
Sth Australia
This survey is to show issues that will be made worst (and hopefully help to bring change) of the new DSM-V "Somatic Symptom disorder" (a new mental health diagnoses which will end up being held over many of our heads when its introduced in May. We are all at risk of this). Anyway take the 30 question "Patients with Complex Medical Disorders survey" which will help show how dangerous the new Somatic Symptom Disorder will be for people with disorders that doctors dont know enough about.
https://www.surveymonkey.com/s/PF2TFQT
** Note he states below that you do not need to be a member of their communities to do this survey.

Patient Concerns Are Being Heard

Submitted by Richard A. "Red" Lawhern, Ph.D. on February 6, 2013 - 7:50am.
This is to announce that the concerns of medical patients for being mislabeled with a mental health issue are being heard. The Ben's Friends organization for rare disorders is sponsoring an online survey of patients who have been referred by a medical doctor to a mental health professional. The survey is initially directed to our 25,000 members in 33 rare disorder support communities -- many of those communities reflected in comments to Dr Frances' previous blog articles. You do not need to be a member of Ben's Friends to add your voice to those of others whom the DSM-5 places at risk of misdiagnosis with a fictitious disorder and marginalization from further medical care.
Please feel free to visit Survey Monkey, to fill out 30 questions and add your story as a patient:
https://www.surveymonkey.com/s/PF2TFQT
Ben's Friends will collate, analyze and articulate survey results in an article to be offered to online publications like Psychology Today, Digital Journal, and print news media. Our tentative working title for the article is "In Their Own Words -- Patients With Complex Medical Disorders Speak to the American Psychiatric Association."
All are welcome,
Richard A. "Red" Lawhern, Ph.D.