I feel like giving up on life

[Victronix]

I would be open to that, but unfortunately my network got rid of insurance covered therapy....it's all out of pocket here. I feel like this network I'm stuck on is only qualified to treat the common cold, and they are told to save money for all the pregnant women and illegals who use the ER for regular appointments.

What about something like Haight Ashbury free clinic? I went to them for free chiropractic years ago and it was better than any of the ones I paid many hundreds of dollars for.

• Behavioral health services (individual and group therapy)
• Psychiatric Services

https://www.healthright360.org/agency/haight-ashbury-free-clinics

 

[Jennifer J]

What about something like Haight Ashbury free clinic? I went to them for free chiropractic years ago and it was better than any of the ones I paid many hundreds of dollars for.

• Behavioral health services (individual and group therapy)
• Psychiatric Services

https://www.healthright360.org/agency/haight-ashbury-free-clinics

Agree, about Haight Ashbury free clinic. I know a few people that went there, too. They were definitely pleased with the help they received especially with the counseling and psychiatric services.

 

[Konflict]

Can free clinics write referrals? Idk if talking to someone there can help me be seen by a wide person range of doctors, all I've been seen by is a GP and internal medicine doctor......NO SPECIALIST at all.

 

[Konflict]

Is there any way to do genetic testing at specific sites? I truly believe this estrogen receptor theory, look at my hair test. Copper goes hand in hand with estrogen and my copper is very low, also zinc is an Aromatase inhibitor (estrogen blocker) and my zinc is SKY HIGH!

I just wonder if there's tests (even if I have to pay out of pocket for) to looking into specific gene expression changes. Also what test would I order to see if I had EDS? (Which I don't, just want it in advance to show the geneticist to save them the trouble is testing and waiting for something I don't have).

 

[Konflict]

Neck is VERY weak trying to support my head now, going to have to wear a neck brace until my body eventually gives out

 

[Kenny Banya]

Can free clinics write referrals? Idk if talking to someone there can help me be seen by a wide person range of doctors, all I've been seen by is a GP and internal medicine doctor......NO SPECIALIST at all.

Are there CFS specialists in your city?

 

[Konflict]

Are there CFS specialists in your city?

I'm sure there are, but idk if these issues are being caused by CFS for sure....I know I have adrenal fatigue but i dont known if my joints issues are caused from it.

 

[taniaaust1]

Explain to me how spinal degeneration is normal? @adreno in 10'weeks I went from normal healthy 30'year old male to bed ridden most of the day. All the tendons in my wrists, ankles, are in pain and continue to get weaker. I can sprain my wrist if i pick up a full gallon of milk. My chest bone pops several times, most likely due to lack of collagen synthesis. My two upper front teeth are loose. When I rub my eyes they make snapping noises duento totalmbody dehydration....again low estrogen prevents your body from holding water and regulating sodium look it up.

I know I have depression, but it's brought on by these symptoms. What I feeling is real....not just popping sounds in the joints like a normal person, but weak painful snaps in ALL joint locations. I have ligament laxity as well and that is only due to 2 things, Ehlors Danlos Syndrome or low estrogen/progesterone. I posted proof of how the supplements I took work on the estrogen receptor. Yes it sounds unlucky....but I'm sure you've been to a Dr and they didn't believe you and your CFS.

If what I have Is a version of connective tissue disorder, or collagen deficiency syndrome, or even a hormonal pathway shutdown.....yea bro you can die from those. Can cause stroke, heart attack, seizure, gastroenteritis

Hi there, I hope I havent replied to this before and forgot as Im not well enough to read all your posts to see so picking random ones to read. I have a lot of the symptoms you do but far more. All I can say is I know my symptoms are not caused by low estrogen as Im estrogen predominant due to also having polycystic ovarian syndrome.

I keep tearing tendons at doing basically nothing, eg I woke up finding I'd torn a shoulder tendon while asleep. I tore the one in my other arm just by reaching out to turn on a light switch. Once I tear a tendon it then doesnt heal properly and I then develop frozen shoulders. A specialist I saw over this issue said these kind of iissues he usually only sees in his diabetic patients and said they'd have an autoimmune cause. Anyway, as I said Im high in estrogen so I do think you should stop assuming your issues are from low estrogen.

Like you, I have issues with both stiffness and strangely at times suddenly Ive swing the other way and very suddenly become very flexiable again (my daughter meets the diagnostic criteria for EDS though I myself do not have that but seeing daughter has, I can I guess assume I do carry a gene for it). My teeth suddenly went loose at one point too so I became concerned I may end up loosing them but then came good again a week later. Whatever is going on within my body, I wont even try to guess what is it but it an suddenly change.

Your tests you have had done are in normal ranges (my hormone tests and other tests show lots of abnormalities, I also was seeing a specialist over my low testosterone (girls are supposed to produce some testosterone too and we need it for our bones) and tried a testosterone implant for that but couldnt handle normal testosterone levels).

Many people have joints which pop... my joints used to pop and my jaw would also click before I even got sick, now they dont do that any more.

Its no good seeing most GPs, you need to be seeing specialists to find out what is wrong and getting the right testing done, whatever it is you need. Ive been under 11 different specialists. You cant expect to be getting good diagnoses when you have unusual issues through just normal drs. Ive had to seek out some of the best in my state.

With the symptoms you have, there is nothing in your posts at all to indicate your life is at risk (other then by suicide for which you may well be at risk for) so I think your anxiety is getting to you

 

[taniaaust1]

@Tunguska no just some milk here and there.....was just using that as an example. Just holding my tablet is hurting my wrists and need to place my fingers on the side to stabilize it.

Holding my mobile phone (which is a light one) hurts my wrists, I use a headset now rather then hold a phone. I suggest to find yourself ways to try to get around the issues you are having with things.

 

[taniaaust1]

I'm sure there are, but idk if these issues are being caused by CFS for sure....I know I have adrenal fatigue but i dont known if my joints issues are caused from it.

that's the whole idea of seeing a "knowledgable" ME/CFS specialist (make sure its a good one).. as they know what is normal in ME/CFS and what isnt. They can aid to rule that diagnoses in or out.

 

[taniaaust1]

I don't think there will be any symptom reduction for me.....who else develops osteoarthritis in 10 weeks? I'm pretty much couch and bed bound 24/7. My joints all crack and are hypermobile, I have spinal degeneration, my teeth are loose, and no doctor can diagnose me....I truly think I'll be in a wheelchair that I can only move with one of those joystick things within a year. And who knows how much longer I'll live with my body deteriorating at such a rapid rate? Doctors don't care....even if there was a cure for any disease big pharma won't let it spread.

With ME it isnt uncommon for someone to go from being able to do things to being bedridden over night (thing is many do improve from there). I do use a wheelchair for my ME/CFS.

How do you know you have ostero-arthritis is that just another assumption you are making while in an anxious state? Have you had scans which show you have ostero-arthritis? and if you have did you previously in recent times have scans which showed it wasnt there before?

You need scans which show actual damage for ostero-arthritis diagnoses. (that's another problem Ive had.... Ive had scans showing I have that in many places (my neck, mid back, lower back scans all showing it .. I suspect its in my hips as well but didnt get hip scans) ,and I wasnt very old the time (drs said it was unusual to have it showing in so many places at the age I was at the time). Ive fixed my pain of that though with fish oil and another supplement I took long term (2-3 years) to rebuild cartlidge so do not get issues with ostero-arthritis any more.

You need to stop assuming you have all this stuff or stuff which isnt curable if you havent had the tests. Without the tests you do not know what you have and only can guess.

 

[taniaaust1]

Idk what to do at this point.....I don't want to be alive if I have to become a vegetable. I can barely even bend over, the osteoarthritis in my spine is so bad. I'm really on edge tonight I feel helpless and useless

If you've havent had scans showing orstero-arthritis in your spine, I suggest to find yourself a very good chiropractor (note many of them arent good...ask around and see if you can find someone to recommend one to you, I tried about 8 and only found 2 good ones) to see if he/she can help your back. I wouldnt be able to walk today if I hadnt been to one. Chiropractors treat what they call sublaxations, these cause pain and other issues. With these popping and other stuff happens too.

(many good chiropractors too will send their clients for scans before they work on them so if you cant find a doctor to get scans done, you may be able to get scans done this way).

 

[taniaaust1]

Neck is VERY weak trying to support my head now, going to have to wear a neck brace until my body eventually gives out

I was having to wear a neck brace for a while to hold my head up due to the extreme weakness I can get. I just wanted to say to you that this does not necessarily mean at all that you are dying. (Im fine with holding my head up now).

hang in there and keep seeking diagnoses and treatment.

and yes free clinics, in fact any dr or specialist should be able to do a referal for you if they believe its needed. I too suggest that clinic cause your anxiety is quite bad (and many conditions can worsen with stress eg autoimmune conditions etc etc) and it may be an opportunity to get a referal to a specialist of some kind for your other issues.

 

[TalismanJ]

Is there any way to do genetic testing at specific sites? I truly believe this estrogen receptor theory, look at my hair test. Copper goes hand in hand with estrogen and my copper is very low, also zinc is an Aromatase inhibitor (estrogen blocker) and my zinc is SKY HIGH!

I just wonder if there's tests (even if I have to pay out of pocket for) to looking into specific gene expression changes. Also what test would I order to see if I had EDS? (Which I don't, just want it in advance to show the geneticist to save them the trouble is testing and waiting for something I don't have).

You're supposed to have a 9 to 1 zinc to copper ratio if you are a male and a 4 to 1 zinc to copper ratio if you are a female. And yes copper and estrogen go hand in hand. Is your zinc "sky high" due to diet or supplements?

 

[Konflict]

You're supposed to have a 9 to 1 zinc to copper ratio if you are a male and a 4 to 1 zinc to copper ratio if you are a female. And yes copper and estrogen go hand in hand. Is your zinc "sky high" due to diet or supplements?

My zinc to copper ratio is 123....my hair test is posted within the thread. People are trying to say I have Mercury toxicity due to "counting rules", but idk how much stock I put into that. No zinc supplements. Another reason why I suspect no estrogen absorption.

Those who have been stricken with PFS (post finasteride syndrome) have inhibited the 5ar2 enzyme within the body, which leads to neuro chemical imbalances which leads to androgen insufficiency....normal levels but no androgen activity. I had this for 6 years before taking vitamin Methyl Bs, vitamin E and K2, now it seems my androgens are working again due to "crashed" E2 levels. I have good reason to beleive I gave myself an estrogenic version of PFS....you'd have to research the effect finasteride and saw palmetto can have on your system to understand.

 

[Konflict]

I just don't understand how ANY condition can spread this quickly due to methylation issues....especially the issues getting dramatically worse after 5 weeks after stopping the supplementation of anything mtheyl B. Did toxins build up in my body for 6 years after I felt side effects from saw palmetto (causing poor methylation) then when I overmethylated they spread like wildfire into blood, brain and organs? Would Mercury kill someone this fast? I'm unsure what else it could be....my total and free testosterone levels raised when I crashed, I'm waking up with erections everyday when I didn't for 6 years, tons of acne and body odor, hell I don't mean to be rude but even my testicles are larger since I crashed.....there's no other explanation in my mind other than something inhibiting my estrogen use. Or I flipped a gene off that has to due with collagen/estrogen synthesis, possibly and important enzyme. No money to do those expensive tests and wouldn't even know which ones I need to test for that....I've always thought a urine metabolites hormone panel would show me how well my T and E really are perfoming.

 

[Konflict]

Hi there, I hope I havent replied to this before and forgot as Im not well enough to read all your posts to see so picking random ones to read. I have a lot of the symptoms you do but far more. All I can say is I know my symptoms are not caused by low estrogen as Im estrogen predominant due to also having polycystic ovarian syndrome.

I keep tearing tendons at doing basically nothing, eg I woke up finding I'd torn a shoulder tendon while asleep. I tore the one in my other arm just by reaching out to turn on a light switch. Once I tear a tendon it then doesnt heal properly and I then develop frozen shoulders. A specialist I saw over this issue said these kind of iissues he usually only sees in his diabetic patients and said they'd have an autoimmune cause. Anyway, as I said Im high in estrogen so I do think you should stop assuming your issues are from low estrogen.

Like you, I have issues with both stiffness and strangely at times suddenly Ive swing the other way and very suddenly become very flexiable again (my daughter meets the diagnostic criteria for EDS though I myself do not have that but seeing daughter has, I can I guess assume I do carry a gene for it). My teeth suddenly went loose at one point too so I became concerned I may end up loosing them but then came good again a week later. Whatever is going on within my body, I wont even try to guess what is it but it an suddenly change.

Your tests you have had done are in normal ranges (my hormone tests and other tests show lots of abnormalities, I also was seeing a specialist over my low testosterone (girls are supposed to produce some testosterone too and we need it for our bones) and tried a testosterone implant for that but couldnt handle normal testosterone levels).

Many people have joints which pop... my joints used to pop and my jaw would also click before I even got sick, now they dont do that any more.

Its no good seeing most GPs, you need to be seeing specialists to find out what is wrong and getting the right testing done, whatever it is you need. Ive been under 11 different specialists. You cant expect to be getting good diagnoses when you have unusual issues through just normal drs. Ive had to seek out some of the best in my state.

With the symptoms you have, there is nothing in your posts at all to indicate your life is at risk (other then by suicide for which you may well be at risk for) so I think your anxiety is getting to you

I don't think you quite understand the severity of what's going on.....sure you'll blame it on an anxious state, but I can tell the different between joint popping and near dislocations in EVERY joint body wide. This has only been going on 12 weeks now, imagine what my body will do at 24 weeks.....I honestly think I'll be dead. There's something going on in my body that isn't allowing me to use my hormones and probably neurosteroids correctly.

Just because serum levels of hormones are normal doesn't mean they are properly being being used. Douglasmitch had a level of over 200pg/ml of estrogen after using E2 cream and his body didn't change one bit for better or worse, therefore something is causing the mechanism to aboard these hormones to not work.

And people self diagnosis all the time, in a way ur trying to self diagnose me by throwing my theory away and saying it can't be true. I just had soft tissue X-rays on my neck and spine, although idk if those are high quality enough to see osteoarthritis or degenerated joints. Also if this was secere I never would have been given a referral to the geneticist. Although I'm not certain this is genetic. All I know is after taking vitamin E and Methylated B12 and b9 I overmethylated and developed some side effects, so I stoped them. Then I started K2 and I crashed hard 10 or so days after starting. Something is not right and my body is degenerating too fast for any clinical or physiological understanding.

I feel the stomach lining move inside me and my sternum and chestnkne crack with ease, like there's little collagen holding them together....I know I'm dead from this, 100%

 

[taniaaust1]

I don't think you quite understand the severity of what's going on.....sure you'll blame it on an anxious state,

You are assuming too much as I never said or even think that. Obviously if something is making you near or bedridden it is severe.. we are just trying to get through to you that doesnt necessarily mean its life threatening.

I can tell the different between joint popping and near dislocations in EVERY joint body wide. This has only been going on 12 weeks now, imagine what my body will do at 24 weeks.....I honestly think I'll be dead

I feel the stomach lining move inside me and my sternum and chestnkne crack with ease, like there's little collagen holding them together....I know I'm dead from this, 100%

its comment like this which arent realistic as you cant know you will be 100% dead from this when its not even known what you have and if it will get better, worst or stay the same.

its you being convinced you will be dead in a short time, is why many of us are suggesting to see a therapist, we are not suggesting this due to not believing you are very unwell as its obvious u do have bad problems affecting you but that doesnt mean that your mental health state over it all should be ignored esp when you've told us u feel suicidal and also get depression on top of these thoughts you are having about its going to kill you which you seem to base on another who had similar symptoms but who ended up suiciding (not dying from his illness).

If you can get yourself stuck on just one or two "theories" on what is causing your issues, you could well miss finding out the actual cause. I suggest to stay open minded while you seek answers to your problems

[

And people self diagnosis all the time, in a way ur trying to self diagnose me by throwing my theory away and saying it can't be true.

yes people do self diagnose all the time and its often not a good thing. I never said your theory cant be true, just that it may not be.

I just had soft tissue X-rays on my neck and spine, although idk if those are high quality enough to see osteoarthritis or degenerated joints.

I think thats the kind of scans I had which picked up my degeneration and orsteroarthritis fine, even in places I dont get pain yet.

I hope you get the answering to things soon.

 

[Victronix]

If you can get yourself stuck on just one or two "theories" on what is causing your issues, you could well miss finding out the actual cause.

I've done this several times but continue to -- it's almost automatic, when you get a sense of what you think the problem is, you grab onto it, probably because the totally unknown situation is scary, painful, etc. The only way to really know is put the theories to the test, literally, which can be costly, but can at least eliminate speculation, one by one.

 

[Konflict]

I've done this several times but continue to -- it's almost automatic, when you get a sense of what you think the problem is, you grab onto it, probably because the totally unknown situation is scary, painful, etc. The only way to really know is put the theories to the test, literally, which can be costly, but can at least eliminate speculation, one by one.

The thing is with my theory about hormonal pathway blockages, it's proven. For those with PFS (post finasteride syndrome) it's proven that they've lowered their 5 alpha reductase enzyme via finasteride or saw palmetto, but the changes stay or even start after use. A new study was just released "proving" the side effects from this drug.

https://www.ncbi.nlm.nih.gov/pubmed/28408350?dopt=Abstract

Now for 6 years I had symptoms of low testosterone and DHT, then when I took my combination of vitamin E and methylated B vitamins I became androgenic again and less estrogenic but had very low T levels still 300pg/ml. Then after vitamin k2 I crashed hard. I feel I gave myself an estrogen version of PFS, instead of the normal androgenic version. But since collagen needs the estrogen receptor to metabolize I'm getting NO collagen benefits. Besides my joints, ligaments and tendons basically degeneration I have stretchy skin, hypermobile joints, slow growing nails, chest bone and sternum popping...things that collagen is needed for. I've said before that vitamin E tocopherols directly inhibit the estrogen receptor and alter its gene expression, and K2 Binds the 17b enzyme and modulated estrogen metabolism.

https://www.ncbi.nlm.nih.gov/pubmed/15763078

I mean I'm making too much sense. The thing is, like PFS, the changes are staying instead of alleviating.

The thing is, when people self diagnose they expect you to be wrong, and the doctor to be right.....,yet everyone here for the most part is self medicating because a doctor can't diagnose them.....kinda ironic right? And I'm not even mad, but I put in the research and come up with extremely logical theories and back them up.