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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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I am having the best day...

TiredBill

TiredBill

Senior Member
Messages
335
2Cor.12:9 said:
@TiredBill - Gosh, I want to apologize if I sounded cavalier. I've read that some people just cannot tolerate cytomel - even name brand and some will opt for Armour or another natural T replacement. Being more tired is even listed as a rare side effect on Web MD.

I hope your doc can help figure out something for you.

Best,
Diane
Click to expand...

No need to apologize, I didn't mean to sound defensive either. I don't know anything about cytomel. Other than I do know it really messed me up. Very cryptic notes from the Endo suggest any ill-effects should not have persisted, as I'm lead to believe it clears quickly. But with me, it lasted.

So I dunno what's going on.

Bill
 
TiredBill

TiredBill

Senior Member
Messages
335
perchance dreamer said:
@TiredBill, have you ever tried Armour or one of the other natural brands? I do well with Nature-Throid. I had been on Armour for years, but it disagreed with me when they changed something about the formula.

Synthroid didn't work out for me at all, and neither did Cytomel. I go to an integrative medical clinic now, and that's where I was given the opportunity to try Armour, and now, Nature-Throid. I don't know if regular doctors are willing to prescribe them.

It's been so long ago that it's hard for me to remember, but I think when I started at the integrative clinic, my P.A. got me to address adrenal problems, too. It all took some trial and error, but I ended up feeling a lot better than when I was on synthetic thyroid supplements.

I haven't read this entire thread, but I think someone provided a link to Stop the Thyroid Madness. This site helped me a long time ago:

https://stopthethyroidmadness.com/
Click to expand...

I have not tried a NDT. My Endocrinologist is one of the few in my medical group that sometimes prescribes it. I'd wondered about it. The disaster with Cytomel (generic) has me a little gun-shy now.

I've had no issues with levothyroxine. Other than I'd hoped for more benefits. But no downsides.

Bill
 
2Cor.12:9

2Cor.12:9

Senior Member
Messages
153
TiredBill said:
No need to apologize, I didn't mean to sound defensive either. I don't know anything about cytomel. Other than I do know it really messed me up. Very cryptic notes from the Endo suggest any ill-effects should not have persisted, as I'm lead to believe it clears quickly. But with me, it lasted.

So I dunno what's going on.

Bill
Click to expand...

@TiredBill - perchance are you Spy Car?
 
TiredBill

TiredBill

Senior Member
Messages
335
BTW, I spoke with my Endocrinologist, my adrenal function is fine.

She was very stumped about the Cytomel provoking such a bad reaction, especially since it clears the body so quickly. I reminded her that I have had CFS for 3+ decades and that sometimes "we" can have cascading effects that others might not have. She said she'd put an assistant on a search of the medical literature.

The good news is the crash has been lifting. Feeling better.

Bill
 
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