Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
Thanks for posting this. Really helpfulThe "PEM Busters" (which prevent or reduce PEM) that various members of this forum have discovered are listed in this post.
The "PEM Busters" (which prevent or reduce PEM) that various members of this forum have discovered are listed in this post.
@JaimeS Do you have a corn sensitivity? As I recall most d-Ribose is made from corn.D-ribose (and all other therapeutic sugars) make me worse, for sure.
Solgar makes a 400-mg and a 600-mg pill. It's very high-quality as well. If I switch brands, I notice.
I find the only thing for me that can reduce the fallout of PEM for me is meditation.
@Cheesus, that's interesting, and inexpensive! Please say more.
@Cheesus thank you for sharing in such detail.
I will tell you something I am not easy with: meditation, lol.
The whole mind-body thing is unsettling to me for the following reason:
This dichotomy / cognitive dissonance between the first half of these and the rest continues to make me uncomfortable.
- I know that mind-body dualism is stupid, and mind-body holism is a thing
- I know that the ability of the mind to steer the body's functions is incredible; yet it also has its limits
- I know that people who preach in mind-body holism often have a series of unsavoury suppositions attached:
- People who aren't well 'just' need to meditate / eat right etc.
- People who are ill misbehaved (the healthier-than-thou mindset)
- Therefore people who are ill deserve it
I have always been able to 'switch off' my adrenergic system if I focused. I had my first and last panic attack in the second year of grad school by relying on this ability. (I told my friends in the program about this, wall-eyed, and they were all, oooh, she had her first panic attack, that's so CUTE!. I was the youngest in my program by a good bit.)
But I've never been able to cool down my PEM symptoms using this technique, because they cross that barrier between what my mind can and cannot make my body do.
If you can, more power to you!
-J