Discussion in 'Institute of Medicine (IOM) Government Contract' started by wdb, Feb 10, 2015.
Poll, how do you pronounce SEID (Systemic Exertion Intolerance
@wdb Strangely my brain had found another way to pronounce it as "Sed" or "Seyd" which was not one of your choices so I didn't vote. My guess is that no one, including doctors, will have a clue how to pronounce this word.
I'll add those
I think there is a non-silent P missing, then a quick rearrange would give: P-I-S-E-D (off)
I like seed. Then, like someone else mentioned in another thread, we can call the US advisory committee the seed sack.
I was just thinking, it's interesting how S.L.E. is reduced to either those letters (verbally spelled out as letters like M.E.), or Lupus. None of S.E.I.D. is unique enough to do as Lupus has done... I think it is better to just say the letters as we do with C.F.S., H.I.V. etc
It seems pretty common, but definitely not universal, to pronounce acronyms with vowels in the right places as words rather than spell them out.
@Min i posted that somewhere too. Or thought I did. Lol
Maybe they have done it like that on purpose.
Its a BS name anyway. Stick with ME .
"Seid" is also a given name, a variant on the Arabic sayyid, which means lord or prince.
It's the same derivation as "El Cid," the legendary military leader of medieval Spain. The pronunciation is kind of halfway between "sid" and "seed."
(You can merge the initial "s" sound with a "th" sound in a sort of lisp if you want to sound authentically Castillian.)
Perhaps an association to El Cid is appropriate in a way. He kept fighting despite a major physical impairment.
Legend has it that he lead a successful cavalry charge... after he was dead.
I noticed it is also Scottish Gaelic word.
seid f (genitive seide, plural seidean or seideachan)
tympany, swelling of the body from flatulence
swelling in a person from luxurious living and deep potations
Wasting time and money thinking up innacurate and ludicrous names for a debilitating neurological illness is obviously more important than researching to find a cure.
i dont understand why they are trying to broaden the definition which will just muddy any good research. They are doing that with fibro now, ingrown toe nail and u can get a diagnosis on fibro??
I put the word SEID into a text document on my Mac, and activated the text-to-speech utility, and my Mac pronounced it as SEED (as in what plants come from).
I was trying out various pronunciation ideas, and find that esi-eye-dee flows off the tongue quite easily (that is, saying the individual letters S-E-I-D in soft and flowing way, rather than in a staccato manner).
I have been saying for years that a new name is the wrong goal. Our primary initial focus should be for a diagnostic test. Then we can define a new name.
Now while I expect the name to be hotly debated, I am more interested in the reasoning behind the other things, and what evidence they cite.
Alex, I totally agree with you and I suspect everyone else does too, that we need research and testing to find a cure and the name is less relevant.
= zombie ?
Maybe that was the goal all along. They throw us a few bones w/ the "serious disease" "real disease" talk and think everyone will be so happy about that and getting rid of CFS. But at this point, the money needs to go to research. At least they did say that. BUT what will this criteria change do to the research and building on what is already out there ? Until there is more I say stick w/ CCC !!!!!
You can also try a Google Site Search
Separate names with a comma.