How decide on next tests to take?

[Sushi]

@roxie60

Have you looked directly at the Infectolab website?

http://www.infectolab.de/index.php?id=51&L=1&L=1\'

I don't see the word " Chlamydophila" but these LTT tests are listed:

- Chlamydia pneumoniae-Elispot-LTT

- Chlamydia trachomatis-Elispot-LTT

- Ehrlichia/Anaplasma-Elispot-LTT

- Yersinia-Elispot-LTT

- Epstein Barr-Virus (EBV)-Elispot-LTT

You should be able to choose just the tests you want. As I wrote, the LTT for borrelia is 184 euros. I did the C. Pneumonia both by antibodies and PCR, but not by LTT.

Infectolab will send results directly to patients, at least they have for everyone I know. I emailed them and got my results overnight. The LTT tests take 2 weeks. I don't know if you can order tests directly from them without a doctor but they would tell you if you emailed them. I think the main difficulty with using Infectolabs from the US is shipping--another thing to ask about.

I had the Igenex complete co-infections and it missed the Bartonella that was found later by PCR (DNA). Ignenex tests for very a very limited number of strains so that is probably why they missed it. I think they test for 3 Bartonella strains when there are over 30 known.

Best wishes in making these decisions.
Sushi

 

[roxie60]

@roxie60

Have you looked directly at the Infectolab website?

http://www.infectolab.de/index.php?id=51&L=1&L=1\'

I don't see the word " Chlamydophila" but these LTT tests are listed:

- Chlamydia pneumoniae-Elispot-LTT

- Chlamydia trachomatis-Elispot-LTT

- Ehrlichia/Anaplasma-Elispot-LTT

- Yersinia-Elispot-LTT

- Epstein Barr-Virus (EBV)-Elispot-LTT

You should be able to choose just the tests you want. As I wrote, the LTT for borrelia is 184 euros. I did the C. Pneumonia both by antibodies and PCR, but not by LTT.

Infectolab will send results directly to patients, at least they have for everyone I know. I emailed them and got my results overnight. The LTT tests take 2 weeks. I don't know if you can order tests directly from them without a doctor but they would tell you if you emailed them. I think the main difficulty with using Infectolabs from the US is shipping--another thing to ask about.

I had the Igenex complete co-infections and it missed the Bartonella that was found later by PCR (DNA). Ignenex tests for very a very limited number of strains so that is probably why they missed it. I think they test for 3 Bartonella strains when there are over 30 known.

Best wishes in making these decisions.
Sushi

Thanks @Sushi , I actually sent them an email with many questions early this morning after I found there website. Although what I saw seems a bit different from what you listed so maybe I need to take another look. I really dont know what I'm going to do.

I notice some places list a Chlamydiophila and I just presumed it was just another name for Chlamydia. I did not think I needed the Chlamydia T.

I appreciate the info. I just really want to know what is going on inside so I can have more confidence regarding a treatment plan. I just dont understand why I'm feeling slightly better (grateful) but it is so confusing and I feel gun shy expecting the next crash. I just want to be well again, life is hard enough without the added burden of mystery illinesses and all the un associated with that.

 

[Valentijn]

I can't believe the cost of the LTT. Are there any US companies that do the test so you don't have to pay for shipping? I looked into the German one at one point but decided I didn't feel strongly enough about lyme to spend that much. I hope you can find he answers you need.

http://www.melisa.org/metals-disease/diseases/borrelialyme-disease looks like it offers it, though you probably need to contact them directly to figure out how to order it.

 

[Valentijn]

Infectolab will send results directly to patients, at least they have for everyone I know. I emailed them and got my results overnight. The LTT tests take 2 weeks. I don't know if you can order tests directly from them without a doctor but they would tell you if you emailed them. I think the main difficulty with using Infectolabs from the US is shipping--another thing to ask about.

They didn't send me my results when I asked them to - they insisted I get them from my doctor instead. Maybe it makes a difference if it's a more local doctor ordering the test, or if the Lyme results are positive.

 

[roxie60]

Yolanda Foster has Lyme

http://radaronline.com/exclusives/2...sease-real-housewives-of-beverly-hills-video/

http://sponauglewellness.com/yolanda-foster-lyme-disease/

 

[Sushi]

They didn't send me my results when I asked them to - they insisted I get them from my doctor instead. Maybe it makes a difference if it's a more local doctor ordering the test, or if the Lyme results are positive.

Who knows! Or maybe they have just changed their policy. A few other members here who had positive results got them directly by email but it was some months ago.

Sushi

 

[SickOfSickness]

If I am remembering right, you can't get real test results if you've had antibiotics recently. I mean what if the antibiotics lowered the levels in your system so you show up below the cutoffs, and don't get diagnosed? You may need to wait.