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hey all,
I first had CFS type issues in mid 2012. After a mild bout of Guillain Barre, I had a flulike illness that turned out to be EBV. This lasted a few weeks and I thought I was getting better, but my sleep was becoming poorer and poorer until I wasn't sleeping at all. Doctors were of no help, except for Dr. Dantini in FL, who advised to get tested for different viruses and that I could use high dose melatonin to fall asleep. I was desperate and went as high as 80 mg. It worked, and I gradually got back to somewhat normal sleep.
I have been seeing a sleep specialist since late 2012 and have used selegiline for daytime muscle twitching related to the sleeplessness, as well as zopiclone at 7.5 mg. This worked for me until a few months ago, when I noticed my sleep quality gradualy becoming poorer. I had been tapering the melatonin for some time and was down to 20-30 mg and thought this may be the reason. I also experienced fatigue and general malaise in this period. I had seen my doctor and he couldn't find anything wrong. Sleep specialist, same thing.
a few weeks ago I developed a cough that would only come on at night, then chest pain, abdominal pain and headaches. Then the fatigue got worse, debilitating. Had trouble getting out of bed, zero ability to focus. Then I had dizzy spells. Went to ER at one point, they said my bloodwork was fine and sent me home.
In the meanwhile, all the symptoms from the past few weeks have resolved--except the sleeplessness. I find I'm not able to sleep at all, similar to 2012. I've increased the melatonin up to 50mg and it's not helping. I don't know what to do.
I'm worried all the melatonin has effed up my immune system and now whatever autoimmune problems caused the sleeplessness are worse.
Has anyone else had issues like this?
I first had CFS type issues in mid 2012. After a mild bout of Guillain Barre, I had a flulike illness that turned out to be EBV. This lasted a few weeks and I thought I was getting better, but my sleep was becoming poorer and poorer until I wasn't sleeping at all. Doctors were of no help, except for Dr. Dantini in FL, who advised to get tested for different viruses and that I could use high dose melatonin to fall asleep. I was desperate and went as high as 80 mg. It worked, and I gradually got back to somewhat normal sleep.
I have been seeing a sleep specialist since late 2012 and have used selegiline for daytime muscle twitching related to the sleeplessness, as well as zopiclone at 7.5 mg. This worked for me until a few months ago, when I noticed my sleep quality gradualy becoming poorer. I had been tapering the melatonin for some time and was down to 20-30 mg and thought this may be the reason. I also experienced fatigue and general malaise in this period. I had seen my doctor and he couldn't find anything wrong. Sleep specialist, same thing.
a few weeks ago I developed a cough that would only come on at night, then chest pain, abdominal pain and headaches. Then the fatigue got worse, debilitating. Had trouble getting out of bed, zero ability to focus. Then I had dizzy spells. Went to ER at one point, they said my bloodwork was fine and sent me home.
In the meanwhile, all the symptoms from the past few weeks have resolved--except the sleeplessness. I find I'm not able to sleep at all, similar to 2012. I've increased the melatonin up to 50mg and it's not helping. I don't know what to do.
I'm worried all the melatonin has effed up my immune system and now whatever autoimmune problems caused the sleeplessness are worse.
Has anyone else had issues like this?