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Help me compile a list of research-funding ME/CFS charities in each country

deleder2k

deleder2k

Senior Member
Messages
1,129
I think MEandYou is finished. The web page states that the crowdfunding for the RTX study is completed.

I would donate to ME-forskning. In 2014 they gave $200,000 to the Rituximab study. In 2015 the financed in full a projects on genes in ME/CFS at Haukeland. If Haukeland requires further funding I am sure they will help out. Someone is also trying to do a study on gamma globulins. If they need funding I think ME-forskning would be interested in helping them out.


I just realised there is an English section on their web page. Check out this link: http://me-forskning.no/english/about-this-fundraising/
 
S

Sasha

Fine, thank you
Messages
17,863
Location
UK
deleder2k said:
I think MEandYou is finished. The web page states that the crowdfunding for the RTX study is completed.

I would donate to ME-forskning. In 2014 they gave $200,000 to the Rituximab study. In 2015 the financed in full a projects on genes in ME/CFS at Haukeland. If Haukeland requires further funding I am sure they will help out. Someone is also trying to do a study on gamma globulins. If they need funding I think ME-forskning would be interested in helping them out.


I just realised there is an English section on their web page. Check out this link: http://me-forskning.no/english/about-this-fundraising/
Click to expand...

Thanks! I see that the ME-forskning page mentions the Norwegian ME Association. Is that a different organisation or a translation of ME-forskning?
 
H

Helen

Senior Member
Messages
2,243
deleder2k said:
In 2015 the financed in full a projects on genes in ME/CFS at Haukeland. If Haukeland requires further funding I am sure they will help out. Someone is also trying to do a study on gamma globulins.
Click to expand...
Do you know if these two studies are presented somewhere? I recall that you posted some short information from a register about the Rituximab study-ies?
 
deleder2k

deleder2k

Senior Member
Messages
1,129
Helen said:
Do you know if these two studies are presented somewhere? I recall that you posted some short information from a register about the Rituximab study-ies?
Click to expand...

The genetic study has just started I believe... Not sure if they will publish it or not.

The Rituximab open phase 2 study is due to be published anytime in PLOS ONE.
 
beaker

beaker

ME/cfs 1986
Messages
773
Location
USA
Mount Sinai ME/CFS Center
Mount Sinai School of Medicine
c/o Derek Enlander MD
860 Fifth Avenue
New York NY 10065

Who to make check out to:
Mount Sinai ME/CFS Center

(Yes ! A tax exempt charity)

```````````````````````````````````
Also there is the ongoing crowd funding #ChiliMEchallenge Although the one Enlander and Hornig are doing ends this week. I believe the challenge to others goes on ?
 
Art Vandelay

Art Vandelay

Senior Member
Messages
470
Location
Australia
The only charity that funds research I am aware of in Australia is the Alison Hunter Memorial Foundation. However it seems that they are now just supporting the National Centre for Neuroimmunology and Emerging Diseases (N.C.N.E.D.) at Griffith University, Queensland:

The AHMF is therefore ceasing operation as an institution with independent charity status. The focus of the AHMF will now be to support the groundbreaking research being carried out at N.C.N.E.D.

Donations in the future should therefore be directed to:
‘Griffith University, National Centre forNeuroimmunology and Emerging Diseases (AHMF)
​
http://www.ahmf.org/donations.html
 
S

Sasha

Fine, thank you
Messages
17,863
Location
UK
beaker said:
Mount Sinai ME/CFS Center
Mount Sinai School of Medicine
c/o Derek Enlander MD
860 Fifth Avenue
New York NY 10065

Who to make check out to:
Mount Sinai ME/CFS Center

(Yes ! A tax exempt charity)

```````````````````````````````````
Also there is the ongoing crowd funding #ChiliMEchallenge Although the one Enlander and Hornig are doing ends this week. I believe the challenge to others goes on ?
Click to expand...

Thanks, beaker.

The ChiliMEchallenge isn't a registered charity, I think - it's a challenge to people to give to the charity of their choice.
 
beaker

beaker

ME/cfs 1986
Messages
773
Location
USA
Sasha said:
Thanks, beaker.

The ChiliMEchallenge isn't a registered charity, I think - it's a challenge to people to give to the charity of their choice.
Click to expand...

You are welcome.

And yes you are correct about challenge. I had only seen the Columbia support part before. oops.
 
H

Helen

Senior Member
Messages
2,243
deleder2k said:
The genetic study has just started I believe... Not sure if they will publish it or not.

The Rituximab open phase 2 study is due to be published anytime in PLOS ONE.
Click to expand...
Thank you. I should have been more clear, but thought of the kind of presentation that are made public before starting studies and for the one about genes and the one about GG. Maybe that´s too early or there will not be any.
 
deleder2k

deleder2k

Senior Member
Messages
1,129
The GG study is not being done by Haukeland. I think they haven't even applied to the ethics committee yet. They also need more funding.. I will update you if I hear more about it.
 
S

Sasha

Fine, thank you
Messages
17,863
Location
UK
I think @serg1942 is away at the moment - can any Spanish-speakers confirm for me that ASSEM doesn't have a research fund that people can donate to? I know they've organised crowdfunds for IrsiCaixa but I believe there's nothing current and that people can't donate to a research fund between crowdfunds?

http://www.asssem.org/
 
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