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having a lot of relief from my cfs symptoms

Messages
15
Location
vancouver
The following thread is regarding the use of rna drops (iCell) for CFS:


my bad, substitute "relief" instead of "cure"...it is relieving me of CFS...

well anyway, when i did a search on the whole forum there wasn't any post about the drops, so I figured it would be good to at least let people here see that they exist...

i don't have ebv, i have cfs, and fibro and hepC...had it since 2007 and it started really fast like in a month i noticed how old I felt when before i had tons of strength/energy. i was in nyc for 2 years and under A LOT of stress (mostly emotional) due to a bad relationship and was in art school and had to pay for it my self by working on top of that...i ended up doing cocaine and started smoking cigs, then 3 months later i was changed, my body felt different, something just shifted and i spiraled downward. I'm clean from the cocaine now...I'm on 150mg effexor/ 600mg 3x a day gabapentin and 60mg cymbalta. If I'm not on the effexor I can barely function and can't get out of bed and the gabapentin also helps with head pain that's always there and eye pain. the cymbalta also helps with the head. the cfs exaserbates my pms really bad too... the drops are working though, i'm getting relief and so far it has changed my legs so much, my ankles don't hurt when i walk , and i can walk for a few hours already and not get pain (this alone is just so miraculous for me, I cry about it a bit)...before the drops i could only handle a few minutes of walking before i would need to sit so that my ankles and soles of my feet could recover from the pain. ugh, anyway, i could write a book about my symptoms and how they are all over the map and have been over the years and how drugs effect them etc...i hope that helps anyway.
 

heapsreal

iherb 10% discount code OPA989,
Messages
10,089
Location
australia (brisbane)
was the effexor tought o come off? My experience with it was terrible but coming off was a nightmare.
Are u treated with any direct treatments for hep c like ribaviron(spelling) or interferons?
Famvir is a common antiviral used by a few of us for herpes viruses like ebv/cmv etc but i do remember reading that it has some effect against hepatitis.
neuro/nerve pain can be tricky, i find lyrica helpful but then it doesnt work as well as neurontin for lower leg pains but then neurontin is not that good for pain elsewhere for me but lyrica is, nothing is black and white :thumbdown:
 
Messages
15
Location
vancouver
i'm still on effexor now, I don't want to start going off until im on the drops a bit longer, maybe a couple months, not sure i have to see how i feel. however, i have come off effexor before about 2 years ago, and I was drug free for 7 months, it was terrible, I had no energy and my body hurt and my eyes hurt bad/brain zaps etc... i'm a bit weird and i went through a whole phase of hating pharmacueticals and refused to be on them until i had no choice but to get back on them because i wanted to just die. the hepc is a low viral count around 14, my specialist said my symptoms (all of them) had nothing to do with the hepc and he said there's no point in going on the pegatron treatment .. *shrug* my cfs doc said the hepc could possibly be doing something in the immune system that's giving me the cfs, but of course he doesn't know for sure...his only answer is graded excersize, ugh! i have to say, ive tried so many drugs and natural methods, they all seem to help for a bit then everything levels out again and i'm back to feeling about ~50% unfunctional in life.
 

heapsreal

iherb 10% discount code OPA989,
Messages
10,089
Location
australia (brisbane)
brain zaps etc sound like antidepressant withdrawal syndrome. if people have issues with coming of these meds they sometimes switch over to prozac as its got a much longer half life and easier to taper off then and hopefully no brain zaps etc. There are things that can help immune sytem for hep c like interferon i mentioned before or interferon inducer like immunovir could help?? if your doc recommended graded exercise then he doesnt know much about cfs, i would look else where, sorry to say. Then also get tested for other viruses and infections that could be reactivating due to poor immune system.

cheers!!
 
Messages
40
i'm still on effexor now, I don't want to start going off until im on the drops a bit longer, maybe a couple months, not sure i have to see how i feel. however, i have come off effexor before about 2 years ago, and I was drug free for 7 months, it was terrible, I had no energy and my body hurt and my eyes hurt bad/brain zaps etc... i'm a bit weird and i went through a whole phase of hating pharmacueticals and refused to be on them until i had no choice but to get back on them because i wanted to just die. the hepc is a low viral count around 14, my specialist said my symptoms (all of them) had nothing to do with the hepc and he said there's no point in going on the pegatron treatment .. *shrug* my cfs doc said the hepc could possibly be doing something in the immune system that's giving me the cfs, but of course he doesn't know for sure...his only answer is graded excersize, ugh! i have to say, ive tried so many drugs and natural methods, they all seem to help for a bit then everything levels out again and i'm back to feeling about ~50% unfunctional in life.

Have you tried Low Dose Naltrexone? It helps with pain from fibro, boosts the immune system and many people feel it helps their mood too.
 

Little Bluestem

All Good Things Must Come to an End
Messages
4,930
...
well anyway, when i did a search on the whole forum there wasn't any post about the drops, so I figured it would be good to at least let people here see that they exist...
...
the drops are working though, i'm getting relief and so far it has changed my legs so much, my ankles don't hurt when i walk , and i can walk for a few hours already and not get pain (this alone is just so miraculous for me, I cry about it a bit)...before the drops i could only handle a few minutes of walking before i would need to sit so that my ankles and soles of my feet could recover from the pain.
...
The drops?
 
Messages
15
Location
vancouver
Could you clarify what ma drops containing iCell are?


Tammy here is a thorough/interesting read about the iCell from the patent page:


The process to consistently create iCells is the focus of this patent.
The iCell invention pertains to the field of enhanced cellular replication.
The iCell is the original missing element that has been eliminated from the homo sapiens diet.
Facts about the iCell can be found in ancient history.
The original recipe for iCell is referenced in Leviticus and refers to “shew bread.” Shew bread was used only for sacrifices to God.
Manna is described in Deuteronomy as the perfect nutrition provided for the Hebrew people as they roamed the desert for 40 years. It was also called the “Staff of Life.” This historic event is still significant based on how humans view complex carbohydrates even today. The body digests and assimilates complex carbohydrates and they become a necessary nutritional building block for the body.
More recently, people have been rejecting bread as the staff of life. The iCell patent uniquely addresses the rejection of carbohydrates by our society.
A major stumbling block with the historical iCell is that the method was never consistently repeated. This process would occasionally result in the production of iCells. The presence of the iCell in Manna is what gave the bread that delectable, desired taste. And, nowadays, it is highly unlikely that iCells are inadvertently produced because few people make bread from scratch where they incubate the dough and keep a “bread starter” generation after generation.
The human body naturally craves any nutrition that it lacks. You crave tomatoes when you are low on lycopene. If you have iron-poor blood, you crave meat.
The natural way your body desires foods balances its nutrition. Since this unique cell, the iCell, has been mostly eliminated from our nutrition, the body doesn't even know what it's missing.
With this treasure missing, your body (not your mind) says you don't have the iCell so you have to keep eating more and more bread to try to attain it. Eating so much bread can lead to many health problems.
However, with the iCell, your body will naturally have the thing that allows it to be nurtured. Therefore, any other nutrition that you embrace will now be used differently.
As with grains, sugars of all kinds have almost been eliminated or blacklisted from our diet. And the way the body handles sugar is gauged to have a less than beneficial effect on the body with diagnoses of diabetes and hypoglycemia. However, if you completely eliminate all sugar, you can't process amino acids. You have to have energy to drive the life-giving metabolic processes in the body.
You are operating a combustion engine without the necessary motor oil. All the basic dietary building blocks that people eat are absolutely healthy for you in all levels and amounts if the iCell is included in your normal diet. Whatever you want to eat, you can when you take the iCell. Foods that the body can't utilize will be naturally eliminated without any reaction, or you will simply desire less of those foods.
Cell membranes are positively affected by the iCell. A cycle of production ensues within the cellular cytoplasm promoting healthy cells and the creation of new stabilized amino acids like trimethyllysine.
There is a relationship between the iCell and amino acids (lysine and trimethyllysine), lipids, phospholipids and picominerals that allows the cell's ion channels within the cell membrane to become more permeable to necessary nutrients.
The iCell process enhances the production of trimethyllysine, a necessary component in the transport and breakdown of lipids. Trimethyllysine is a component of histone proteins; a precursor of carnitine; and the coenzyme of fatty acid oxidation.
Carnitine is created from lysine and methionine making a quaternary ammonium compound. In living cells, it transports fatty acids from the cytosol into the mitochondria as lipids are being broken down to generate metabolic energy.
BRIEF SUMMARY OF THE INVENTION

ICells occur in nature as do naturally-occurring yeast spores which are ambient and not specific to a particular environment and have an effect on other organisms. ICells have appeared inadvertently throughout man's existence but remained inconsistently identified until now. The essence of this patent is the procedure of how to consistently create and harvest iCells.
The iCell is a consistently-propagated cell that allows nutrition to be more completely utilized in the human body. The iCell is identified as a new cellular organism whose properties have been encountered throughout humanity's history. This patent outlines the production of consistently-propagated cells.
At a cellular level the iCell has far-reaching applications including water reclamation, water desalination, human hydration, and unique polypeptide bonding creating new amino acids. The iCell is responsible for providing information to affect the body's DNA via RNA. And iCells have a direct correlation with the measurable potential for hydrogen.
 
Messages
15
Location
vancouver
ok well, i started feeling my old "sunburn" side effect a couple days ago that I got when i was on over 150mg effexor about 6 months ago, so my impatientness has caused me to lower the dose from 150mg to 75mg. So far so good at this dose, no fatigue, but I'm monitoring how I feel very closely...sunburn feeling is better too so far. I'm one week into taking the drops...
 
Messages
10,157
The iCell is a newly-created cell that is incubated and harvested using sprouted barley grain (or other gluten grains) along with clover seeds, pepper seeds, alfalfa water, and a live yeast sponge. An electrical current is used to stimulate the curing process to solidify the iCell in a contained field. The iCell is a consistently-propagated cell that allows nutrition to be more completely utilized in the human body. This nutrition represented by Cellionose and enhanced amino acids allows for the creation of healthy cells throughout the body. The iCell is identified as a new cellular organism whose properties have been encountered randomly throughout humanity's history. This patent outlines the production of consistently-propagated cells. At a cellular level the iCell has far-reaching applications including water reclamation, water desalination, human hydration, and unique polypeptide bonding creating new amino acids. ICells have a direct correlation with the measurable potential for hydrogen. The iCell is responsible for providing information to affect the body's DNA via RNA.

http://www.faqs.org/patents/app/20120070898

I don't see any research that supports the idea that this substance can allow the creation of healthy cells throughout the body (this would be worth billions) nor that the iCell can provide information to affect the body's DNA via RNA (this would be worth billions). It just doesn't sound very feasible to me and for the cost of these drops, they should really be producing some evidence. I will stick to my Ipad and forgo the iCell.
 
Messages
12
Location
Ontario
Hi,
You might want to check out the literature on BAC's. ( bio algae concentrates). It is the only green food my body will accept and process without giving me any issues. Actually, one of the few foods my body will metabolize.Other people that I know that have severe g.i. issues and hypersensitivities have been ok with it. The research has also been done on the effects of this product on the glands in the brain. The spirulina's are grown hydroponically with bio-reactors. I can send you the links if you wish to have them. Or just go online and enter "Dr.Kiriac". Plenty of evidence with the BAC's. One booklet called "Awakening the Genius", and "The Magic is Bac". ( might be Majic). No need to purchase the booklets, if you dig in a bit they are free. I have nothing to do with the company, just a stroke of luck that I found it. ( not an MLM) btw.
 

Tristen

Senior Member
Messages
638
Location
Northern Ca. USA
my bad, substitute "relief" instead of "cure"...it is relieving me of CFS...

well anyway, when i did a search on the whole forum there wasn't any post about the drops, so I figured it would be good to at least let people here see that they exist...

i don't have ebv, i have cfs, and fibro and hepC...had it since 2007 and it started really fast like in a month i noticed how old I felt when before i had tons of strength/energy. i was in nyc for 2 years and under A LOT of stress (mostly emotional) due to a bad relationship and was in art school and had to pay for it my self by working on top of that...i ended up doing cocaine and started smoking cigs, then 3 months later i was changed, my body felt different, something just shifted and i spiraled downward. I'm clean from the cocaine now...I'm on 150mg effexor/ 600mg 3x a day gabapentin and 60mg cymbalta. If I'm not on the effexor I can barely function and can't get out of bed and the gabapentin also helps with head pain that's always there and eye pain. the cymbalta also helps with the head. the cfs exaserbates my pms really bad too... the drops are working though, i'm getting relief and so far it has changed my legs so much, my ankles don't hurt when i walk , and i can walk for a few hours already and not get pain (this alone is just so miraculous for me, I cry about it a bit)...before the drops i could only handle a few minutes of walking before i would need to sit so that my ankles and soles of my feet could recover from the pain. ugh, anyway, i could write a book about my symptoms and how they are all over the map and have been over the years and how drugs effect them etc...i hope that helps anyway.


Early on with me/cfs, I realized an intolerance to many meds, especially anti-depressants. That's great if you can handle them, and they actually help you. And way to go with getting clean! Keep on keepin on!

The issue of hcv contributing to me/cfs is very curious. Obviously the vast majority of people with hcv do not get real me/cfs.....but a few do. My experience is that it's around 2%, which says a lot since it's significantly higher than the general population. But, that's just my experience based on interacting with hundreds of folks from both communities over the years. Too many people confuse the "chronic fatigue" of hcv with me/cfs.....and your doc is right, people with hcv do not get anywhere near as sick as folks with me/cfs. But the other doc may be correct as well......for some reason, a very small percentage of those with hcv may well have the virus contributing to their immune dysfunction, which may lead to me/cfs. Nill for research in this arena, so we really just don't know yet. Whatever may be happening, I would say that your very fortunate to have a doc who gets it with the me/cfs. By the way, hcv viral load has little to do with it's impact on ones body. And I am guessing you meant 14 Million because just 14 is not detectable with most tests. If it truly is just 14, you have a great shot at clearing it easily...maybe even spontaneously (which I wouldn't count on having me/cfs).

With hcv, there are new drugs (mostly protease inhibitors) currently in pipeline that will be all oral, interferon free, and showing very high cure rates. The old interferon tx will soon be history. The drugs are now entering phase 3 clinical trials and are expected to be on market within 2 years.

I personally believe some recovery from me/cfs possible for those with hcv if they successfully treat and clear the virus in the early stages of the me/cfs. But I doubt the same is true for those with chronic me/cfs that has gone on for many years.

All the best,

T
 
Messages
15
Location
vancouver
all i know is i bought it (rna drops) and it's working for me...having my life back is worth the expense. Besides over the past few years i've spent god knows how much time and money on all kinds of supplements, drugs, and therapies and not one of them actually worked.
 
Messages
15
Location
vancouver
Early on with me/cfs, I realized an intolerance to many meds, especially anti-depressants. That's great if you can handle them, and they actually help you. And way to go with getting clean! Keep on keepin on!

The issue of hcv contributing to me/cfs is very curious. Obviously the vast majority of people with hcv do not get real me/cfs.....but a few do. My experience is that it's around 2%, which says a lot since it's significantly higher than the general population. But, that's just my experience based on interacting with hundreds of folks from both communities over the years. Too many people confuse the "chronic fatigue" of hcv with me/cfs.....and your doc is right, people with hcv do not get anywhere near as sick as folks with me/cfs. But the other doc may be correct as well......for some reason, a very small percentage of those with hcv may well have the virus contributing to their immune dysfunction, which may lead to me/cfs. Nill for research in this arena, so we really just don't know yet. Whatever may be happening, I would say that your very fortunate to have a doc who gets it with the me/cfs. By the way, hcv viral load has little to do with it's impact on ones body. And I am guessing you meant 14 Million because just 14 is not detectable with most tests. If it truly is just 14, you have a great shot at clearing it easily...maybe even spontaneously (which I wouldn't count on having me/cfs).

With hcv, there are new drugs (mostly protease inhibitors) currently in pipeline that will be all oral, interferon free, and showing very high cure rates. The old interferon tx will soon be history. The drugs are now entering phase 3 clinical trials and are expected to be on market within 2 years.

I personally believe some recovery from me/cfs possible for those with hcv if they successfully treat and clear the virus in the early stages of the me/cfs. But I doubt the same is true for those with chronic me/cfs that has gone on for many years.

All the best,

T

my cfs doc didn't really say he thought my cfs was from hepC, he was just running through some possibilities...the truth is, he doesn't know why I got cfs. My personal belief is that it is from emotional stress, as i had borderline personality disorder and I was forcing myself to do to much and for all the wrong reasons...my body said F-you, I'm not taking this abuse anymore, and shut down so it could heal and so I could learn how to live by spiritual principles which prior to the cfs I was lacking very much...I'm still a very impatient person, but I have grown so much due to the cfs.
 
Messages
15
Location
vancouver
ok just for kicks here is a list of what I've tried:

70 chiropractic adjustments
2 iv ozone therapies followed by iv B12
6 prolotherapies
5 trinfinity 8 sessions
1 atlas profilax adjustment
msm, SAMe, vit C, iron, colostrum, magnesium, vit D, Omega 369, dig enzymes, l-glutamine
Dr. McCombs Candida cleanse
diy Fecal transplant
probiotic retention enema
antidepressants
tramacet (i would take this during my pms time just so i could walk)
gabapentin
infrared sauna
infrared heating pad
energy healings
therapuetic massage
binurial beats (holosync etc)
hemp powder
gluten free diet
high protein diet
hatha yoga, meditation and prayer

i think that's it...