Not sure if this question falls in this category, but have you had to move due to your condition? Either to get closer to family for home care, due to costs, or to move closer to a clinic that treats you? We've been planning on moving out of the Seattle area for some time due to the nearly prohibitive cost of living here. With my husband's emerging condition, we are seriously considering moving closer to whichever clinic we have luck with in the next few months. Or to a cheaper part of the country with a major airport nearby. Right now, we are looking at some options in the south or Oregon/Arizona if we stay on the west coast. I don't think it's entirely negative on our end, as we were wanting a new "life adventure" of sorts anyway. I'm curious about your experiences.