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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Stargazer that is great news! was mutaflor the only intervention or did you do other treatments too?
I'm on my sixth month of Mutaflor. It was awful at first, I had some very strong reactions to it, particularly after day three but then it seems to settle down. It still makes me feel a bit off - tired, neurological symptoms like needing to stretch, buzzing feelings, etc. But if I am honest, the side effects have got less and less each month. And I am now nearly 100% recovered. I've been seeing KdM. I think it's a case of persevering if you can tolerate it.
Just back from KDM, I was on VSL#3 but not tolerating it very well. I asked if I could try Mutaflor but he suggested Super 8 for me instead. Professor de Meirleir seems to group patients and treatments according to test results and his experience, we definitely get the benefits of this.
Has anyone been on Super 8? I haven't come across it before and don't know anything about it.
Just back from KDM, I was on VSL#3 but not tolerating it very well. I asked if I could try Mutaflor but he suggested Super 8 for me instead. Professor de Meirleir seems to group patients and treatments according to test results and his experience, we definitely get the benefits of this.
Has anyone been on Super 8? I haven't come across it before and don't know anything about it.
Thanks anne_likes_red, I think you're right. Did you have to keep it refrigerated? Just wondering whether to order it from a pharmacy or off the internet.
dsdmom, I'm intolerant of corn and also had problems with the d-lactate bacteria. I felt itchy and toxic and just generally headachey and flu-ish. More than usual. Gassy too! I was taking 3 pouches a day.