Hi,
OK, this is a 2-part question.
It's possible that my daughter, who has CFS, FM and GI issues, may have an underlying mast cell activation disorder. She is going to get the initial round of testing for tryptase and other potential markers. I do know that even if such markers are negative, that it's still possible that she may still have MCAD.
My 1st question is whether anyone has seen Dr. Lawrence Schwartz (rheumatologist) in Richmond, VA and if they know he treats MCAD. I believe he does. If anyone has seen him, can you share your experiences?
My 2nd question is that as far as treatment, I know the standard ones are an H1, H2 blocker and cromolyn sodium. If that treatment protocol doesn't work, then I wonder if he would consider more out of the box treatments? Or, would he be more of a conservative practitioner who only offers traditional treatments?
The reason I am asking is to see if it would make sense to see him vs. someone more locally.
Thanks in advance.
Sincerely,
Scotty81
OK, this is a 2-part question.
It's possible that my daughter, who has CFS, FM and GI issues, may have an underlying mast cell activation disorder. She is going to get the initial round of testing for tryptase and other potential markers. I do know that even if such markers are negative, that it's still possible that she may still have MCAD.
My 1st question is whether anyone has seen Dr. Lawrence Schwartz (rheumatologist) in Richmond, VA and if they know he treats MCAD. I believe he does. If anyone has seen him, can you share your experiences?
My 2nd question is that as far as treatment, I know the standard ones are an H1, H2 blocker and cromolyn sodium. If that treatment protocol doesn't work, then I wonder if he would consider more out of the box treatments? Or, would he be more of a conservative practitioner who only offers traditional treatments?
The reason I am asking is to see if it would make sense to see him vs. someone more locally.
Thanks in advance.
Sincerely,
Scotty81
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